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 Do you have spina bifida or hydrocephalus?


Or are you caring for a child or a young person with these disabilities

If so, we’d love to hear from you!

Come along to our regular support group for this area. Meetings are held 1-3pm usually on the second Monday of each month at the Disability Resource Centre, Poynters Road, Dunstable (view MAP).

Please come whenever you can, drop in for as long as you can. While there is no crèche, you children are always welcome!

For more information or to confirm your attendance please telephone Valerie Bottoms on 01582 757745!

You also see the next two events for the Eastern Region below!

Dunstable Support Group

  • Event Date/Time: June 11, 2012 1:00PM – 3:00PM
  • Location: Dunstable
    • Support Group
Do you have spina bifida or hydrocephalus? If so there is a support group for you in this area! Venue: Disability Resource Centre Poynters House, Poynters Road, Dunstable, Beds. LU5 4TP Telephone: 01582 470 900 Website: http://www.drcbeds.co.uk/ Starting Time: 1pm End Time: 3pm Map: Click here! Brief: Meetings dates…
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Dunstable Support Group

  • Event Date/Time: July 9, 2012 1:00PM – 3:00PM
  • Location: Dunstable
    • Support Group
Do you have spina bifida or hydrocephalus? If so there is a support group for you in this area! Venue: Disability Resource Centre Poynters House, Poynters Road, Dunstable, Beds. LU5 4TP Telephone: 01582 470 900 Website: http://www.drcbeds.co.uk/ Starting Time: 1pm End Time: 3pm Map: Click here! Brief: Meetings dates…
Read More

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News

Shine Peer Support Volunteers

May 11th
Shine now has two Peer support volunteers working in the East of England to…
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Did You Know?

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 2400 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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