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Being a carer and support you can access

Three in five people in the UK will become carers at some point in their lives.

Definition of 'carer'

A carer is someone who looks after and supports a friend, relative or neighbour who could not manage without their help. This could be due to age, physical or mental illness, or disability.

It does not mean a professional care-worker or personal assistant who gets paid for their work.

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The Coalition Government has allocated Carers £400 million to take a break.

Announcing the funding, care services minister Paul Burstow said, ‘The Coalition Government’s vision for social care will deliver on our manifesto commitment to provide guaranteed respite care by making over £400million available in additional funding over the next four years to the hundreds of thousands of carers who work over 50 hours a week.’

This announcement, on the face of it, is very good news, however there is a risk that the money might not be used for its intended purpose as it is not ring-fenced. 

The Princess Royal Trust for Carers commented, ‘In 2009-10 and 2010-11, £150 million was pledged for carers' breaks, but our research found that most primary care trusts failed to spend the money on carers and instead used it elsewhere.’

The PRTC is launching a campaign urging carers and supporters to contact carer centres and their MPs, asking Primary Care Trusts to publish plans and to spend as much as possible on carer breaks.

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Did You Know?

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 2400 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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