Diagnosis

Diagnosis of IH is by scan and measurement of the CSF pressure.

On CT scan, the ventricles (chambers in the brain) will usually appear normal or small.

The CSF pressure should always be measured despite the “normal” scan results. It will be found to be raised on lumbar puncture.

On examining the eyes, papilloedema (swelling of the optic disc) may be present.

This in itself is often an indication for surgical intervention.

As most people with IH appear perfectly normal, they often do not receive the recognition they deserve.

But IH can be very disabling.

Relationships suffer. Headache can be constant, thus disturbing normal sleep patterns. Depression is not uncommon.

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May 11th

Shine now has two Peer support volunteers working in the East of England to…

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 2400 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.