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Monitoring

Some 11 - 35% of people recover spontaneously; in others, management is variable.

Some people do very well on a regime of diuretics and steroids but must be monitored symptomatically, and by CSF pressure measurement to protect the eyesight.

There is little evidence that drug therapy improves the long-term outcome, although a short (two week) course of steroids may be enough to re-open venous pathways so that the IH resolves.

Where sight is affected, it may be necessary to fenestrate the optic nerve (slit the sheath surrounding the nerve): everyone should be under the care of an opthalmic surgeon.

Some people need repeated lumbar punctures to remove excess CSF, or the excess CSF may need to be diverted by means of a surgically inserted shunt.

In theory, a lumbar peritoneal shunt is the shunt of choice. In practice, the patient may undergo frequent shunt revision, including changing to a ventriculo-peritoneal shunt, or insertion of a lumbar reservoir.

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Did You Know?

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 2400 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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