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Tel: 01733 555988

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Local Associations in London and South Region

Greenwich and District Association for Spina Bifida and Hydrocephalus

Contact: Margaret Mears

Tel: 0208 318 5936

Email:

Isle of Wight Association for Spina Bifida and Hydrocephalus

Contact: Derek Sprake

Tel : 01983 551234

Kent Association for Spina Bifida and Hydrocephalus

Office : 7 The Hive, Northfleet, Kent, DA11 9DE

Tel: 01474 536501/532590

E-mail :

Website: www.kasbah.org

North West London Association for Spina Bifida and Hydrocephalus

Contact: Hazel Prentice

Tel : 0208 5794685

Somerset Spina bifida Hydrocephalus Information Networking Equality –SHINE

Contact: Cynthia Dawes (Chair)

Email:

Contact: Iris Coton (Secretary)

Tel: 01935 479233

E-mail :

Southampton and District Association for Spina Bifida and Hydrocephalus

Contact: Stan Fitzgerald (Chair)

Tel: 02380 402644

Contact: Emma Kelly (Vice Chair)

Tel: 07969104367

Email: emmejkelly@gmail.com

Surrey Association for Spina Bifida and Hydrocephalus

Website: www.surreyasbah.org.uk

Email :

Tel: 020 8449 0475

Sussex Association for Spina Bifida and Hydrocephalus

Office : Units 5 and 6, Swan Wood Park, Gun Hill, Horam, East Sussex, TN21 0JS

Tel: 01825 873045

Email: office@sasbah.org.uk

website: www.sasbah.org.uk

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News

Shine Peer Support Volunteers

May 11th

Shine now has two Peer support volunteers working in the East of England to…

Did You Know?

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 2400 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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