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Participants Needed for Pressure Ulcer Survey

    • james lind alliance pressure ulcer partnership
The survey is in association with the James Lind Alliance Pressure Ulcer Partnership. Why is the survey important? There are several different prevention and treatment options for pressure ulcers. It is important that we try to understand which of these options are effective and make a difference to people with or at risk of pressure ulcers and/or the people who care for them. We think it is vital that any further research into the prevention and treatment of pressure ulcers, should focus on questions that are important to people who have or are at risk of pressure ulcers, the…

Shine Peer Support Volunteers

    • shinepeersupport
Shine now has two Peer support volunteers working in the East of England to add greater value to its existing services. The volunteers can offer peer support to individuals, parents and families on issues relating to spina bifida and or hydrocephalus. We now have a peer support volunteer based in Norfolk and one based in Suffolk so local contact is available in both counties. Peer support volunteers can support you via email or telephone, meet with you, listen and share your experiences, problems and achievements related to spina bifida and hydrocephalus. They can easily tap into information and advice…

Benny Bear Latest Newsletter - Now Available

LIKE the Benny Bear Facebook Page! Benny Bear is a special bear, he has a shunt to help treat his hydrocephalus and loves to play games, go to school and make friends. This is the 2nd edition of the Benny Bear newsletter! Its PACKED with all the latest news, fun things to do, what’s on + when! Plus, Benny's very own Easter story! Have a flick through below or download your very own copy for FREE! Simply CLICK HERE!Open publication

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Shine Peer Support Volunteers

Shine now has two Peer support volunteers working in the East of England to…

Did You Know?

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 2400 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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