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Tel: 01733 555988

    • Our Vision

We are a highly active community of members, families, friends and professionals working together to;

Meet the needs, value the contribution and celebrate the lives of people living with spina bifida and hydrocephalus.

As an organisation we listen intently to our membership and the Shine Adult Member’s Council (SAMC) feeds directly into the process and policy of the charity.

In October 2011 we welcomed our new Membership Development Officer, Gobi Ranganathan. The purpose of Gobi’s role, which is backed by a £250,000 Big Lottery Grant, is to engage the Shine membership and empower everyone involved to reach their full potential.

Our quarterly magazine, Together, keeps everyone informed about all the latest news and offers the opportunity for people with spina bifida and hydrocephalus to share their experiences.

We are highly active on our social networks and believe that this form of communication is crucial to reach more people who live with spina bifida and hydrocephalus. Darren Fower, our Media Development Officer, ensures that all the latest news is shared via Facebook, Twitter and other relevant media.

We are always keen to hear from you and we invite you join us in our community – to find out more email gobi.ranganathan@shinecharity.org.uk

Join Our Community

News

Go Folic! Before You Frolic (Cymru)

A major campaign, which urges all sexually active women who might become pregnant to…

Did You Know?

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 1700 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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