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Membership - Our community

    • Shine Community
    • Shine Community
    • Shine Community
    • Membership
    • Northern Ireland
    • Shine Community
    • Shine Community
    • Family Opportunity Weekend - Lifelong Opportunities Programme
    • Silver Dreams - 1st meeting
    • Shine Community
    • Shine Community
    • Membership
    • Shine Community
    • Family Opportunity Weekend - Lifelong Opportunities Programme
    • Northern Ireland
    • Silver Dreams - 1st meeting
    • Shine Community
    • Northern Ireland
    • Shine Community
    • Silver Dreams - 1st meeting
    • Shine Community
    • Shine Community

We are a highly active community of members, families, friends and professionals working together to;

Meet the needs, value the contribution and celebrate the lives of people living with spina bifida and hydrocephalus.

As an organisation we listen intently to our membership and the Shine Adult Member’s Council (SAMC) feeds directly into the process and policy of the charity.

In October 2011 we welcomed our new Membership Development Officer, Gobi Ranganathan. The purpose of Gobi’s role, which is backed by a £250,000 Big Lottery Grant, is to engage the Shine membership and empower everyone involved to reach their full potential.

Our quarterly magazine, Together, keeps everyone informed about all the latest news and offers the opportunity for people with spina bifida and hydrocephalus to share their experiences.

We are highly active on our social networks and believe that this form of communication is crucial to reach more people who live with spina bifida and hydrocephalus. Darren Fower, our Media Development Officer, ensures that all the latest news is shared via Facebook, Twitter and other relevant media.



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News

The charity ‘Shine’ responds to fortification news

Following an article that appeared on the Telegraph website, entitled "Government could force manufacturers…

Chamber members raise over £830 for Shine

Chamber members have raised over £830 for Shine, the Chambers’ nominated charity of the…

Did You Know?

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

Hydrocephalus can be congenital or acquired.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated CSF around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and fits.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance.....

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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