Awareness of Anencephaly Worldwide - This is an information spreading and awareness website for anencephaly. We offer a contact is page for parents to have someone to talk to who has been through the same experience of dealing with anencephaly. Visit: www.worldwideanencephalyawareness.com
Bowel and Bladder
PromoCon provide a national service to improve the lives of people with bladder or bowel problems by offering product information, advice and practical solutions to both professionals and the general public. Visit: www.disabledliving.co.uk/PromoCon
Counselling Directory only lists counsellors and psychotherapists registered with a recognised professional body or have proven qualifications and insurance cover. Find a counsellor or psychotherapist dealing with Carer Support, click here!
CAPR-Style offer a range of adaptive clothing for children and young adults. Designed around the needs of the wearer the clothing is made to look traditional whilst discreetly including adaptive features to improve the quality of life of the wearer. Visit: www.capr-style.com
Disability Rights UK - provide information and guidance for disabled people on accessing good services and support, including education, work, independent living, benefits and health services, and what to do if services fall short. Visit: www.disabilityrightsuk.org/ Tel: 020 7250 8181 (open Mon-Fri, between 10.00 and 12.30pm and 1.30 and 4.00pm). Email:
Disability Grants - Set up by a mum with a son who has CP, the disability grants website aims to help other parents and the disabled people find grants. The directory of grants includes those for children, holidays, housing, recreation and much more! Visit: www.disability-grants.org
DrugWatch - Our goal is to provide information about medications and medical devices, in order to help people learn more about the associated risks and potential side effects. Visit: www.drugwatch.com
Easybelts - is a velcro closing belt for young people and adults. Easybelts has proved to be helpful in enabling those that struggle with the common belt buckle mechanism. The Easybelt replaces the pin mechanism with velcro allowing the person to secure the belt with easy, we also offer a larger D-Ring for those with limited hand coordination. Visit: www.easybelts.co.uk
Disability Advice Centre Glasgow (DAC) provides confidential and holistic information and support to people with a long-term health condition or disability, their families/carers and health professionals. Visit: www.shaw-trust.org.uk/disability-advice-centre-glasgow/
Headway - the brain injury association
Headway is the UK-wide charity that works to improve life after brain injury. Through a range of frontline services run from its Nottingham base and via a network of more than 100 groups and branches across the UK, it provides support, services and information to brain injury survivors, their families and carers, as well as to professionals in the health and legal fields. W: www.headway.org.uk T: 0808 800 2244 E:
Therapy Directory promote the benefits of complementary therapy and aim to give visitors all the information they need to help them make an informed decision about whether therapy would be right for them. The website has an FAQ's section, a number of useful articles written by their members and the facility to search for a practitioner in your area. Visit: www.therapy-directory.org.uk
Cruise Holidays UK - "As a travel agent who is disabled and with a visually impaired partner I understand how great cruise holidays can be for those with accessible travel needs." Visit: www.silverservicecruises.cruiseholidaysuk.co.uk
Heathrow Airport Guide have recently added a section to our network of Airport Guides that provides information about disabled access and special/medical needs at the airport. Visit: www.heathrow-airport-guide.co.uk
Pernicious Anaemia Society exists to provide Information, Help and Support to sufferers of Pernicious Anaemia and B12 Deficiency and their families and friends. Visit: www.pernicious-anaemia-society.org
DIG is an online database which allows you to search for information on adult social care services, health groups and other community information on a countywide, regional and national basis. Visit: www.durham.gov.uk/dig
Portsmouth Parent Partnership - The Portsmouth Parent Partnership Service offers parents and carers living in the PO1 –PO6 area free, confidential and impartial information and advice about their child’s Special Educational Needs (SEN). Visit: www.askportsmouth.org
Submit your useful link
If you think your website would be of interest or use to our community of 75,000 individuals, families, friends, and professionals, living with hydrocephalus, or spina bifida, and related issues, please use the form at the bottom of this page to submit your details.
Disclaimer: All the sites listed here have been checked for suitability. However, the constantly changing nature of the internet means some sites may alter after we have visited them. Shine is not responsible for the content of external websites.