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Be Prepared

If you have had a mild or severe reaction to any latex product, or have food allergies, it is important to wear a medic-alert bracelet or necklace, carry an epi-pen (portable, injectable epinephrine), carry non-sterile gloves, notify community professionals of your health risk, and avoid any environment where you may come into contact (either directly or indirectly) with products containing latex.

People who have a latex allergy, or are at high risk, which includes people with SB, should be aware of latex containing products that may trigger an allergic reaction.Some of those products are listed below.

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Shine Peer Support Volunteers

Shine now has two Peer support volunteers working in the East of England to…

Did You Know?

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 2400 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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