Why does spina bifida happen?

At present causation is unknown and research continues. However, we do know that taking folic acid supplements can reduce the risk of spina bifida in unborn babies. For families with no history of spina bifida the Dept. of Health recommends women take an ‘over the counter’ dose of 400mcg daily. For families where there is a history of spina bifida, a prescription dose (5mg) of folic acid is needed.  Folic acid should be taken daily, ideally at least three months prior to conception and through to the 12th week of pregnancy. Even with fortification of flour products with folic acid, a supplementary tablet is needed.
For more information please visit: www.gofolic.co.uk

The exact reasons why the neural tube develops incorrectly are not yet known but it is probably connected with both genetic and environmental factors.

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Shine Peer Support Volunteers

May 11th

Shine now has two Peer support volunteers working in the East of England to…

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Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 2400 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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