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Who we are

    • Shine in print

As of the 20th October 2011, Spina bifida • Hydrocephalus • Information • Networking • Equality - Shine, became the new name for the Association for Spina Bifida and Hydrocephalus (ASBAH).

Shine is a registered charity, which was formed in 1966, initially to help families and individuals affected by spina bifida and hydrocephalus.

Today, Shine is a community of 75,000 individuals, families, friends, and professionals, sharing achievements, challenges and information on living with hydrocephalus, or spina bifida, and related issues.

Working together throughout England, Wales and Northern Ireland, we strive to overcome challenges and achieve the best for you and your family.

We'd like to invite you to be a part of the Shine community whether it's to join in discussions on our Facebook page, share experiences and achievements, take part in our campaigns and research, access our unique services, visit our website for information, or support our work.

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News

Go Folic! Before You Frolic (Cymru)

A major campaign, which urges all sexually active women who might become pregnant to…

Did You Know?

Babies born prematurely are at increased risk of developing hydrocephalus.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Each used mobile phone or ipod donated raises around £5 for Shine.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Hydrocephalus is a build up of excess fluid in the brain.

Shine is always looking for Marathon Runners to help with fundraising.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine has over 1700 followers on Facebook.

Spina bifida occulta is a hidden form of spina bifida.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Most babies with spina bifida undergo surgery within 48 hours of birth.

Some babies with spina bifida are now operated on before they are born via keyhole surgery.

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