About us

Shine provides specialist support from before birth and throughout the life of anyone living with spina bifida and/or hydrocephalus, as well as to parents, families, carers and professional care staff. Shine enables people to get the best out of life.

As of the 20th October 2011, Spina bifida • Hydrocephalus • Information • Networking • Equality - Shine, became the new name for the Association for Spina Bifida and Hydrocephalus (ASBAH).

Shine is a registered charity, which was formed in 1966, initially to help families and individuals affected by spina bifida and hydrocephalus.

Today, Shine is a community of 75,000 individuals, families, friends, and professionals, sharing achievements, challenges and information on living with hydrocephalus, or spina bifida, and related issues. Working together throughout England, Wales and Northern Ireland, we strive to overcome challenges and achieve the best for you and your family.

Vision statement and objectives

Our vision is to create a society that meets the needs, values the contribution and celebrates the lives of people living with spina bifida and hydrocephalus.

Find out about our vision

Who's who


Shine is lucky to have many amazing supporters. Take a look at our patrons, trustees and key members of staff and learn more about the important part they play in the running of the organisation.

Find out more

Annual reports and accounts

Here you can find records of Shine's activities in the year, in relation to Shine Forward our five year strategic plan. 

Read our reports

Safeguarding policy

Our policy aims to ensure that all those who connect with the charity have a positive experience and are safeguarded.

SHINE acknowledges our duty of care to safeguard and promote the welfare of children, young people and adults at risk and is committed to ensuring safeguarding practice reflects statutory responsibilities, government guidance and complies with the Charities Commission best practice.

 Read our safeguarding statement here

Complaints and procedure

Across all Shine’s services and activities we aim to provide the highest possible quality of service to those individuals or organisations interacting in any way with the organisation.

However, we acknowledge that there may be occasions when things go wrong or you are dissatisfied with us and may wish to complain. We will take complaints seriously and learn from them in order that we can consistently improve the quality of our services and activities.

See our complaints procedure

Trusts and Foundations

Charitable Trusts and Foundations provide essential funds that enable Shine to enhance the lives of our members in every way possible.

We would like to thank all the Trusts and Foundations who demonstrate their belief in our work through gifts to Shine.

Find out how your trust or foundation can help

Donate Become a member