Trusts and foundations

The generosity of Trusts and Foundations enables us to carry out our vital work and make a meaningful difference to the lives of people with spina bifida and/or hydrocephalus and their families and carers.

Why choose Shine?

We have a dedicated and experienced team who develop strong and lasting relationships with trusts, foundations and individual philanthropists. We provide regular reports on the impact of your donation, robust monitoring and evaluation of our work and opportunities for you to visit projects and see our work on the ground. We will ensure that we match your area of interest to the varied work we do to support adults and children with spina bifida and/or hydrocephalus.

The difference you can make: 

Whether you have a passion for implementing essential early years provision for children, supporting us with a large-scale, step-change programme or funding the much-needed work we do within local communities to ensure our members and their families overcome challenges and live life to the full, we can match you to a project that works for you.


Covers the cost of one health information day, equipping members, carers and parents with vital information about spina bifida and hydrocephalus. We need to run at least 15 events each year to meet the needs of our members.


Enables our qualified health specialists to offer one-to-one support for 12 months to the parents of children aged 0—10 years as part of Shine’s Little Stars programme.


Would allow us to print and send our 16-page magazine ‘Together’ to our 12K members twice a year, providing them with the latest updates and key information about Shine.


Would enable our members to access the support of a part-time benefits advisor. Many of our members face financial poverty and social poverty and we know that provision of timely and specialist advice increases the success rates of benefit applications.


Funds the vital role of one Support Worker. Their comprehensive knowledge and experience enables them to support members to overcome challenges and maintain their health and wellbeing.


Covers the cost of running our helpline. Last year we received 2,000 enquiries to the helpline. It costs £30 an hour for a one-to-one, tailored telephone support session with Shine’s Health Team.


Would transform the lives of the 20,000 patients (and a further 60,000 impacted family members) each year who are misdiagnosed with dementia, when they have Normal Pressure Hydrocephalus (NPH) – a treatable brain condition that can usually be corrected by surgery. You could help us tackle a large-scale societal problem, lead transformational change and save public funds.

Thank you 

We’d like to say a huge thank you to all of the Trusts and Foundations that have so generously donated to a variety of projects and services this year.


Want to work with us?

To find out more about how you or your Trust or Foundation can work with us please contact Laura Myatt, Trusts and Foundations Manager at  




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