Trusts and Foundations

We are truly grateful for the generous support given by Charitable Trusts and Foundations, whose funding is enabling Shine to enhance the lives of members in so many ways. Below are examples of vital work which has been enabled by this support.

Awards for All England

We were delighted to receive a National Lottery Awards for All England grant of £9,949 towards our Pioneers Project to cover further development of Shine40Plus and the 40Plus Annual Conference.

Shine now has more than 3,500 members aged 40 and over. Thanks to medical advances people with spina bifida and hydrocephalus are living healthier and more fulfilling lives well into their 50's and beyond. This is great news, though bringing challenges with ageing.

The Shine40Plus initiative was developed to provide a supportive network to older people with the conditions. The Awards for All grant has enabled the Shine40Plus conference - bringing 70 member delegates, partners, parents and carers from all around the UK together to discover more about all aspects of life with spina bifida and hydrocephalus - and will support the development of Shine40Plus, including the Peer Support Volunteer Development Day, additional activities and special interest groups such as the Facebook café, book and crafts groups.

This is the second large donation received from Awards for All England, the first being in £2,014 towards our Giving Time to Shine volunteer project.

Big Lottery Fund Northern Ireland

Thanks to a grant from the Big Lottery Fund NI for Shine’s work to support children in Northern Ireland, we have been able to run more parents’ groups across NI.

The funding, which began in January 2018, has enabled Shine NI to run new events such as the Come Try Day (an opportunity to test out different sports and activities such as boccia, golf dance, cheer leading, and Sign2Music for the little ones), a Bowel and Bladder information day, and events for professionals to boost their knowledge about spina bifida and hydrocephalus.

Thanks to such generous funding we now have a Support and Development Worker in each of our health care trust areas.

Big Lottery Fund Wales

We are so grateful for the support of the Big Lottery Fund Wales, who have granted more than £20,000 per quarter since 2015 to develop Shine Cymru’s Support and Development network across Wales.

This significant programme aims to ensure that members in Wales who encounter multiple disadvantages through spina bifida and hydrocephalus can access basic necessities such as housing, food, health and safety. This generous grant from the Big Lottery Fund Wales has enabled the development of a network of face to face and online support groups, an information service, and tailored support for members with a higher level of need.

Thanks to this funding, Shine Cymru has been able to run new events such as ‘Understanding how your child learns with Hydrocephalus’ and ‘Good Continence Care’, which are enabling parents, members, carers and healthcare professionals to feel more informed about supporting children and young people with spina bifida and hydrocephalus, deepen their understanding about the physical and psychological impact of life with the conditions, and access helpful support and products.

The Clare Milne Trust

In 2014, the Trustees of The Clare Milne Trust generously made a donation of £5,000 towards Shine’s work in Devon and Cornwall. This is just one of several donations made by the Trustees in recent years towards our vital services in these areas, and we are extremely grateful for their continued support.

The Trust was set up in 2002 by the late Clare Milne (granddaughter of the author A A Milne, best known for the Winnie the Pooh books) who was herself disabled and took a great interest in services for the disabled in, or close to, Devon and Cornwall.

Within these two counties, Shine is aware of over 300 individuals living with spina bifida and/or hydrocephalus. The Trustees’ wonderful donation will enable us to provide our members in these areas with information and support covering a wide spectrum of issues including health matters, pregnancy advice, education, benefits, housing and independent living. This is lifelong support, often from before a baby is born, through childhood and into adult life.

DM Thomas Foundation for Young People

The DM Thomas Foundation for Young People (formerly known as Hilton in the Community Foundation) is dedicated to supporting young people in need, with a particular focus on improving access to, and quality of, education and care. Since its establishment in 2000 it has raised over £15 million for charity and awarded grants to help vulnerable and disadvantaged young people across the UK and Europe.

The Foundation awarded £11,848 in 2015 towards Shine's Bella Bear project, to create new educational resources for children with spina bifida aged 0-11. The grant enabled Shine to create 'Bella Bear', who has spina bifida, and is special friend of Shine’s Benny Bear, who has hydrocephalus. Together they spearhead the new Benny and Bella Bear Club to engage our young members. [Link to BB page]

Simon Sheehan, Director of the DM Thomas Foundation for Young People said: 'Through our grants programme we are able to support some amazing local and national youth causes like Shine. Our Grants Committee and Trustees liked the ambition of the Bella Bear project, and the way it seeks to address inclusion for both boys and girls affected by spina bifida. It is hoped that the new Benny and Bella Club will encourage a wide membership, increased awareness, and support for children and their families.'

Duchy Health Charity

We are delighted that the Duchy Health Charity has renewed and increased their support to Shine this year, awarding £1,000 for our health work in Cornwall. Our Support and Development Service addresses people's mental health needs by combating loneliness and arranging peer support groups and meet up opportunities, access to our expert health advisors and tailored one-to-one support for all of our members.

Global’s Make Some Noise Campaign

Global’s Make Some Noise campaign was created by Global, the media and entertainment group, to help smaller charities raise awareness for projects that help disadvantaged youngsters living with illness, disability or lack of opportunity.

Shine was delighted to receive £30,925 from Global’s Make Some Noise in 2016. This has enable Shine to extend its programme of activities, storybooks, educational outreach and family events for children up to 11 years with spina bifida and hydrocephalus, through the Benny & Bella Bear Club.

By sharing their personal experience of spina bifida and hydrocephalus, Benny and Bella help the children to feel more confident, connected and able to cope at this very important stage of growth and development. Benny & Bella provide a reassuring voice and handy tips for parents and carers too!

GMSN and Global’s radio coverage has helped to raise awareness of spina bifida and hydrocephalus through their popular stations such as Capital, Capital XTRA, Heart, Radio X, Classic FM, LBC, Smooth and Gold, which reach millions of people every week.

Peter Harrison Foundation

Our warmest thanks to the Peter Harrison Foundation which in May 2016 pledged £7,019 over three years towards Shine's South East Family Support Project.

The Foundation's first grant instalment is enabling Shine's South team to proceed with a programme of learning and social activities for 0-16 year olds with spina bifida and/or hydrocephalus and their family members across the region. The programme aims to improve parents' knowledge, young people's confidence, and entire families' emotional wellbeing as they address challenges linked to spina bifida and hydrocephalus.

Events the Foundation have already supported include a family day trip to Birdworld, Henley regatta for the disabled, and an activity day at High Ashurst Outdoor Education Centre for 8-13 year olds, with new events planned for this year.

Regional Health, Social Care and Well-being Grant Scheme

We are delighted to report that Shine Cymru has been awarded one year’s funding for a new project in the counties of Swansea, Neath/Port Talbot and Bridgend, which will look at ways to improve links with statutory and other health and social care services available in the region, and how these services can be made more accessible to our members. The grant is managed by the Swansea County Voluntary Service. 

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