Shine's Corporate Plan 2022 - 2027

For over 50 years, Shine has been involved in remarkable developments, which have brought about improvements to the lives of thousands of people.

We’re proud to have launched our new Corporate Plan, informed by years of experience, expertise and most importantly, our members’ feedback and input.

Our knowledge of spina bifida, hydrocephalus and associated conditions has evolved so far that, more so than ever, we understand the importance of careful management to prevent and reduce their effects.

By continually listening to your views we have developed a plan which aims to tackle the issues which matter to you most.

The new plan sets out our aims and objectives from now until 2027, and how we intend to achieve them and ensure a membership which is engaged, enabled and empowered.

To request a copy of the the Corporate Plan, email

Shine’s vision

A society where all those whose lives are affected by Spina Bifida and / or Hydrocephalus, and associated conditions, are empowered and enabled through choice and equality of opportunity.

Our aim

To make a positive difference to the lives of people affected by spina bifida and / or hydrocephalus, and associated conditions.

Our values

  • Promote the empowerment and participation of people with spina bifida and hydrocephalus, and associated conditions
  • Value and respect all the different people with whom we work
  • Challenge the ways in which society disables our members
  • Work to achieve excellence
  • Welcome challenge and review
  • Use resources ethically, thoughtfully and responsibly

Our goals for 2022 - 2027

  1. Enabling babies and children with Spina Bifida and/or Hydrocephalus to achieve their potential

  2. Empowering young people with Spina Bifida and/or Hydrocephalus through knowledge, confidence and skills to manage their conditions and thrive

  3. Adults with Spina Bifida and/or Hydrocephalus have the choices and opportunities to live healthy and independent lives

  4. A connected community

  5. Preventing Spina Bifida and Anencephaly

  6. Changing experiences of pregnancies affected by neural tube defects

  7. Transforming attitudes and improving access to health and care services through engagement, partnerships, research and campaigning


Download our corporate plan here


For details of Shine's position on the following issues that relate directly to our vision and aims, view our Position Statement

Download here

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