Who's Who?

Our board of Trustees oversee the work we do, ensure we are compliant with the legalities of company and charity law.  They challenge the plans we have and the decisions we want to make, ensure due diligence is carried out and that best practice is followed at all times.

Meet, and learn a little more about our Trustees below...

Greg Smith, Chair

Greg joined the board of Shine in May 2013 and was Vice Chair from 2016, and has now taken on the role of Chair.

As someone with life experience of spina bifida, he relished an opportunity to contribute to the charity, with a personal goal very aligned with Shine’s vision of 'no barriers to meeting our members’ potential for purposeful & fulfilling lives, equal to any other citizen'.

Prior to running his own User Experience Strategy & Research consultancy, Greg has held senior leadership positions across a range of private and public sector organisations, namely Head of User Experience Design & Research for Europe at ebay inc., Director of User Research at LBi (now Publicis Sapient/Digitas) and Head of Strategy, Business Planning, Research & Evaluation at the former Disability Rights Commission.

He holds a MSc in Human-Computer Interaction, and a BSc (Hons) in Industrial Engineering & Business Studies.

Greg’s particular areas of expertise on the board include Digital User Experience Design & Research, Disability Rights strategy, leadership of global & remote teams with £million+ budgets.

Greg currently lives in London.

Rebecca Bates, Treasurer   

Rebecca has an in-depth background in finance.

She holds a Bachelor of Science Honours degree in Business Administration and French from Aston University and is a fellow of the Association of Chartered Certified Accountants (FCCA)

Rebecca is Head of Finance at Coloplast LTD – one of the world’s leading suppliers of intimate healthcare products including those associated with continence, ostomy and wound care. This role has helped her develop a unique understanding of the lifelong challenges face by the members of Shine.

Her particular areas of expertise on the board are accountancy and business.  

Rebecca lives in Peterborough with her husband and two young boys who keep her busy outside of work.  She also enjoys spending time with friends and family.

Roger Bayston

Clinical Microbiologist and Professor of Surgical Infection at Nottingham University School of Medicine, Roger Bayston is one of the world’s leading authorities in his field and the man who pioneered the development of the revolutionary ‘Bactiseal Shunt’ which has helped to vastly reduce infections in patients with hydrocephalus.

In a career spanning over 50 years, Roger has worked as a Microbiologist with paediatric surgeons at Sheffield Children’s Hospital and Great Ormond Street Hospital, Hon. Microbiologist at the National Hospital for Neurosurgery and at The Nottingham School of Medicine.

He has carried out extensive research into shunt complications, resulting in publications on diagnosis, more effective treatment and prevention of infections. Roger is also a vigorous campaigner for folic acid supplementation in flour in order to help prevent neural tube birth defects.

His many academic achievements include postgraduate qualifications in Pathology, Clinical Microbiology, Surgical Infection and Biomaterials Science. Roger is also a Fellow of the Royal College of Pathologists.

Roger has been recognised with many awards both at home and abroad during his illustrious career including a Lifetime Contribution Award from Shine 2013.

Involved with Shine for over 40 years, and a board member for over 10 years, his areas of expertise are surgical infection, complications of shunting for hydrocephalus, neurosurgical, urological, orthopaedic and spine infections, infection diagnosis, treatment, and prevention.

 A fluent speaker of Swedish, Roger lives in Nottingham.

Joanne Williams

A resident of Northern Ireland, Joanne joined the board of Shine in 2017.

She was inspired to become involved with Shine through her young nephew who has spina bifida and hydrocephalus.  She is a huge advocate of both raising the awareness of the condition and promoting the benefits of Folic Acid.

Joanne has 34 years' experience in the Civil Service and is currently acting Head of the Industrial and Fair Employment Tribunals in Northern Ireland with responsibility for corporate governance, finance and operational delivery.

Her areas of expertise on the board are Corporate Governance and Operational Delivery.

Joanne is also Shine’s Lead Trustee for Northern Ireland, and one of two lead Trustees for Safeguarding.

Michael Brown

Mike hails from an educational background, most recently as a Head of Mathematics and Science at a large 6th Form college.

Having retired from teaching he now works as a consultant. 

Mike fervently believes in the importance of raising awareness of Shine and how the charity can benefit people with spina bifida and/or hydrocephalus and he is a regular visitor to a variety of other organisations to fly the flag for Shine, and in turn increase donations to support the vital work that the charity does.

In his spare time, as befits the son of a former Arsenal footballer, Mike enjoys sport, particularly golf which he plays to a high standard.

Andrew Smart

Andrew was born with spina bifida and as such has vital first-hand knowledge and experience of the condition and the lifelong challenges that go with it.

He has spent his career working with both the NHS and many national and international not-for-profit organisations using his considerable expertise to develop their communications and engagement activities.

Andrew is highly committed to helping under-represented groups develop their voice about the many real issues that matter to them, and this has seen him lead numerous large-scale campaigns.

He lives near Milton Keynes and in his spare time, he likes to keep fit with hand-cycling. Andrew also enjoys photography.

Aziza Dar

Aziza is a former IT professional and provides this area of expertise to the Shine Board.

During her 38 years of working life, Aziza worked for several companies including BT, YMCA Barbican and Merton Council.

During her time with Merton Council, she was involved with several important and high-profile projects including developing Financial and Procurement systems across the whole organisation,  supporting Social Care case management for both adults and children ensuring the systems were always available to social workers and putting in place a Multi-Agency Safeguarding Hub.

Aziza received awards as Merton Employee of the Year in 2004 and Voluntary Services Council Volunteering Achievement in 2017.  She also gained a Masters in Business Administration from the Open University in 2014.

She has been a member of Shine since 2003 when she was diagnosed with hydrocephalus.  This provides Aziza with first-hand knowledge and experience of the challenges facing those living with the condition.

As well as being a Trustee for Shine, Aziza is a keen volunteer for both Shine Surrey (of which she is also a trustee) and Merton Voluntary Services project supporting people with barriers to employment.

She has lived Merton since 1981 and brought up her family there.

Sue Kukadia

Sue provides board expertise in matters of legal and business management.

Currently Head of Immigration (Specialist Tax) and a director of leading international audit, tax and advisory firm Mazars, Sue has over 20 years' experience within the professional services industry. She has also worked for Ernst and Young, Deloitte and BDO, which provided great experience of growing teams and running engagements generating millions in revenue.

A regular speaker at seminars and conferences, Sue was the winner of The RBS Chairman’s Award at the Asian Women of Achievement Awards in 2013. She has also been a runner-up for several other awards including the Women in Business Awards 2016 and the First Women Awards 2014.

Sue has served on many leadership boards within her industry and has actively been involved in policy decisions with The Home Office.

As someone who lives with spina bifida,  disability is a subject that is close to Sue’s heart, and she is able to greatly empathise with Shine members and their families in facing their unique challenges.

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