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SHINE'S Golden Anniversary

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2016 is a special year for Shine as it's our 50th anniversary.

The charity, first called ASBAH, started way back in 1966 to help families with spina bifida and hydrocephalus.

50 years on, we have developed into the Shine you know today - with more than 11,000 members!

We will be celebrating everything that has been achieved in our history, as well as the services we provide to this day, with a series of events throughout 2016.

Our services

  • Our health and education expertise goes beyond that offered by national services, and ranges from general health advice to one-on-one support from the health and development and education teams.
  • Our network of support and development workers around the country are at the end of a phone, email, Facebook post or Shine event, providing a reassuring voice to people experiencing the changes and daily challenges that spina bifida and hydrocephalus can bring for individuals and families.
  • Our staff are skilled at supporting people through change and loss, and enabling people to feel more positive about their future even when the going is tough.
  • Shine’s education team also work with schools so that teachers understand how spina bifida and hydrocephalus affect daily life and learning, and how to support their young students to reach their potential and feel valued members of their classes.

Collette Torrance, one of our support and development workers, said:

“A big part of what we do is helping young families come to terms with a new diagnosis, which can feel so isolating, so our events and Facebook groups help to connect members so they feel less alone. Sometimes, just knowing there is someone out there who understands and cares makes all the difference.”

    • Staffordshire Social Group
    • shine teenies

Special golden anniversary events taking place include the official launch at the Golden Anniversary Service in Peterborough Cathedral, Shine Firewalk and our Heritage exhibition (the first exhibition of its kind in the UK).

Shine Chairman, Richard Astle will be undertaking various challenges for the charity, including a 50 mile walk and an overseas trek.

Richard has already raised £40,000 for the new Shine Health Hub, which offers specialist health checks for members with spina bifida and hydrocephalus, both complex conditions.

He has also has been a key player in developing Shine in the City, which aims to build upon a spirit of partnership to develop mutually beneficial partnerships in the city.

Not least of these is the Go for Gold Challenge to recruit 100 companies to pledge £500, thereby raising £50,000 in Shine’s anniversary year.

Richard said:

“So much has been achieved by the charity during the last 50 years. The service and support it provides is vital so if you are able to help us during 2016 to make sure this is a year to remember then we would very much appreciate the support.”

Want to help support Shine?

If you would like to be involved in the Go for Gold Challenge, or would simply like further information, please fill in the form below and one of our team will be in touch.

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Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.

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