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Tel: 01733 555988

Who's who

    • Shine

PATRONS: HRH The Duchess of Gloucester GCVO, Danny Mills, David Proud, Rob Hicks and Natalie Povey (Shine Cymru)

CHAIR: Mark Noakes

CHIEF EXECUTIVE: Kate Steele (MBA)

Finance Director/Company Secretary: Margaret Conner FCMA

Director of Services Northern IrelandCathy McKillop

Director of Services England:  

Director of Fundraising and Communications: Position Vacant

Health Development Manager - Health and Policy Issues: Gill Yaz

Service Project Development ManagerDavid Isom

National and Regional Offices:

NATIONAL OFFICE - Service Project Development Manager - David Isom, 42 Park Road, Peterborough PE1 2UQ,  T: 01733 555988, E: 

ENGLAND NORTH - Kathryn Bhogal: Shine Northern Region, c/o 42 Park Road, Peterborough PE1 2UQ. T: 07710 154826, E:  

ENGLAND SOUTH - Naomi Marston, SDW Manager & Services Coordinator, PO Box 585, Sevenoaks, KENT TN13 9SE  T: 01733 555988, E:

WALES - Sian Prince, Regional Coordinator for Wales & South West England, Shine Cymru PO Box 249 Dinas Powys CF64 9FR, T: 07789 616416, E: 
 

NORTHERN IRELAND - Cathy McKillop, Director, Shine, PO Box 132, Cushendall, BT44 0WA, T: 01733 555988 (local rate call), E: 

BOARD OF TRUSTEES

Mark Noakes (Chair)

Greg Smith (Deputy Chair)

Aidan Kehoe (Hon Treasurer)

Patricia Adley

Professor Roger Bayston

Michael Brown

Lisa Cain

Sally Hesling

Paul Manning (Wales)

Peter Serjent

Neil Watts

Joanne Williams (Northern Ireland)

Registered office address:
Spina bifida • Hydrocephalus • Information • Networking • Equality
42 Park Road, Peterborough, PE1 2UQ
Registered in London Registered Company No. 877990

Click below for Department Structure Charts

Updated 14th October 2016:

News

National charity aims to engage, enable and empower during Awareness Week

The charity Shine is asking everyone to wear yellow during Spina Bifida and Hydrocephalus…

Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.

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