'Hydrocephalus and Me' Cards

Order your free 'Hydrocephalus and Me' card today, and help those around you to understand what support they can offer you to help with the effects of your condition.

Order your Hydrocephalus and Me card

Not sure what to include?  Check out our examples below, but remember - no two people with hydrocephalus are the same, your card is personal to you.

Hydrocephalus means that I might:

  • have headaches 
  • have blurred or double vision 
  • have bladder and / or bowel incontinence 
  • have anxiety and / or panic attacks 
  • have depression   
  • have difficulties with walking and/or balance
  • have difficulties with co-ordination and/or wayfinding
  • have difficulties with memory 
  • have difficulties with following conversation / instructions 
  • have difficulties with starting tasks and / or completing them 
  • have difficulties with learning and concentration 
  • have difficulties with controlling my mood / behaviour 
  • have difficulties with judging when I need help 
  • have difficulties with taking in a lot of information all at once
  • have difficulties with adapting to change 

Things you can do to help, include: 

  • Finding me somewhere to sit down 
  • Getting me a glass of water 
  • Writing things down that I need to remember / give me time to write them down or record them on my phone 
  • Being patient 
  • Speaking clearly, with information given in small ‘chunks’ 
  • Giving me some extra time to complete a task 
  • Finding an accessible toilet 
  • Sending me reminders about appointments / tasks 
  • Helping me calm down if I’m anxious 
  • Reminding me what I need to do, and when 
  • Giving me somewhere quiet to work

For instructions on how to use your card, check out our video below.


Order your Hydrocephalus and Me Card

Shine would like to contact you with information about our work, which may include:

• To notify you of news, research and developments relevant to your child's condition

• To invite you to events where you can meet and connect with professionals and peers

• To share good news and success stories from the Spina Bifida and Hydrocephalus communities

• To seek your views on upcoming plans and projects If you are happy to be contacted, please tick the box.





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