Join Shine Today - For FREE!

Join the UK's leading charity for people with spina bifida and hydrocephalus and start accessing specialist advice and support today. Shine membership is completely free of charge and open to anyone living in England, Wales and Northern Ireland.

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Professional Membership is also available, click here for more information

Adult Membership (aged 16+)

Are you aged 16 or over and have a diagnosis of spina bifida and/or hydrocephalus, spina bifida occulta, normal pressure hydrocephalus (NPH) or encephalocele? Complete this form and join Shine today to access expert support and connect with like minded people.

Become a member

Child/Young Person Membership (under 16)

If you are a child or young person under 16 and have spina bifida and/or hydrocephalus, spina bifida occulta or encephalocele you can apply to become a Shine member with your parent's consent. Either complete the form yourself, or ask them to help you and we'll connect you with other members just like you.

Become a member

Parent or Carer Membership

If you are the parent of, or care for someone with spina bifida and/or hydrocephalus, spina bifida occulta, normal pressure hydrocephalus (NPH) or encephalocele, Shine is here to help. Complete this form and join Shine today to access expert support and connect with like minded people.

Become a member

Prospective Membership

If your pregnancy has been affected by spina bifida and/or hydrocephalus, encephalocele or anencephaly and you would like some advice or information you can become a prospective member - alternatively, call 01733 559888 and we'll connect you with the most appropriate team.

Become a member

Sibling Membership

If your brother or sister has spina bifida and/or hydrocephalus, spina bifida occulta, normal pressure hydrocephalus (NPH) or encephalocele and you would like to gain information on how to support them, Shine is here to help. You may also want to attend sibling events.

Become a member

Honorary Membership

Have you lost someone to spina bifida, hydrocephalus, encephalocele or anencephaly either recently or in the past? You can access support by becoming an honorary member of Shine, or alternatively, call 01733 559888 and we'll connect you with the most appropriate team.

Become a member

Become a 'friend of Shine'

If you want to know more about spina bifida, hydrocephalus, encephalocele or anencephaly but aren't involved in, nor directly care for someone with the conditions, become a friend of Shine today to access information from our expert teams.

Become a member

Membership Benefits

By joining Shine’s community of members, families, friends and professionals you will receive access to the following services, completely FREE of charge:

Help, advice and support from our experienced staff teams who have specialist knowledge in the conditions we represent (spina bifida, spina bifida occulta, hydrocephalus, normal pressure hydrocephalus (NPH), encephalocele and Anencephaly).

This includes:

Health Specialists with expert condition knowledge to answer your health queries, help you prepare for medical appointments and give you OT and Physio advice.
Specialist Benefit Advisors to help you access the financial assistance you are entitled to.
Support and Development Workers (SDWs) who will help you through any of life’s challenges (common support requests cover care, housing, education, employment, equipment grants)
Early Intervention Workers who are dedicated to helping our 0-12 year old members to thrive and helping parents and families to navigate all of the ups and downs

...as well as...

Access to a network of friends and peers amongst our 12,000 + members
Invitations to virtual, regional and national events and support groups
Invitations to join virtual peer support networks and specialist closed zoom sessions
Option to join Shine Health Direct, our Home Delivery Service
A free copy of our twice yearly magazine ‘Together’

Register online now and once your form has been processed a Support and Development Worker will give you a call to introduce themselves to you.