Membership (16 years of age and over)

Health information

Disabilities (tick as appropriate)

Next of kin

Legitimate Interest:

Following the introduction of new data protection laws in May 2018, Shine will communicate with members under the terms of ‘legitimate interest’

‘Legitimate interest’ allows us to use your personal information in ways you could reasonably expect, and which have a minimal impact on your privacy. In each instance, we endeavour to carefully consider any impact on your personal rights and interests.

Shine will communicate with you in line with the benefits of membership as set out within your application. Typical examples of when we might use this approach include:

• To tell you about the work Shine is doing
• To notify you of news, research and developments relevant to your condition
• To invite you to events where you can meet and connect with professionals and peers
• To share good news and success stories from the Spina Bifida and Hydrocephalus communities
• To seek your views on upcoming plans and projects

Supporters Consent:

In addition to news, updates and invitations, Shine would also like to email you with information about ways you can support the charity and our work in the future. This may include:

• Ways to donate or raise money for us
• How to get involved with campaigns
• Volunteering opportunities

If you consent to receiving emails from us about upcoming appeals and opportunities please tick the box below.

How to change or withdraw your consent:

You can change the way you hear from us or withdraw your permission for us to process your personal details at any time by using our contact form on the ‘Contact Us’ page or by calling us on 01733 555988.