Become a Parent or Carer Member of Shine for FREE
If you are the parent of, or care for someone who has Spina Bifida and/or Hydrocephalus, Spina Bifida Occulta, Normal Pressure Hydrocephalus (NPH), Idiopathic Intracranial Hypertension (IIH), or Encephalocele, Shine is here to help you. Please complete this form and join Shine today to connect with like-minded people and access expert support. (If you want to discuss the needs of the person you care for we would need their consent to be able to do this).
Become a parent or carer member today
Update your contact details
If you're already a member but would like to update the information we hold for you, please click here
Our offer to you...
By joining Shine’s community of members, families, friends and professionals you will receive access to the following services, completely FREE of charge:
- Help, advice and support from our experienced staff teams who have specialist knowledge in the conditions we represent (spina bifida, spina bifida occulta, hydrocephalus, normal pressure hydrocephalus (NPH), encephalocele and Anencephaly).
This includes:
- Health Specialists with expert condition knowledge to answer your health queries, help you prepare for medical appointments and give you OT and Physio advice.
- Specialist Benefit Advisors to help you access the financial assistance you are entitled to.
- Support and Development Workers (SDWs) who will help you through any of life’s challenges (common support requests cover care, housing, education, employment, equipment grants)
- Early Intervention Workers who are dedicated to helping our 0-12 year old members to thrive and helping parents and families to navigate all of the ups and downs
...as well as...
- Access to a network of friends and peers amongst our 12,000 + members
- Invitations to virtual, regional and national events and support groups
- Invitations to join virtual peer support networks and specialist closed zoom sessions
- Option to join Shine Health Direct, our Home Delivery Service
- A free copy of our twice yearly magazine ‘Together’
Register online now and once your form has been processed a Support and Development Worker will give you a call to introduce themselves to you.
Become a parent or carer member today
Need advice urgently?
If you need support or advice quickly, please ring our helpline on 01733 555988 (between 9am and 5pm Monday to Friday) and we can register you over the phone and connect you with the right person to help you.
Become a parent or carer member today
Just complete the short form below to access a range of membership benefits. For information about how Shine will store and use your personal data, please ensure you read our privacy policy before submitting your application.
