Become a child or young person member (under 18) for FREE

If you are the parent of a child or young person aged under 18 who has Spina Bifida and/or Hydrocephalus, Spina Bifida Occulta, Idiopathic Intracranial Hypertension (IIH) or Encephalocele please complete this form to register you and your child as members of Shine.

Become a child or young person member (under 18) today

Update your contact details

If you're already a member but would like to update the information we hold for you, please click here

Our offer to you...

By joining Shine’s community of members, families, friends and professionals you will receive access to the following services, completely FREE of charge:

Help, advice and support from our experienced staff teams who have specialist knowledge in the conditions we represent (spina bifida, spina bifida occulta, hydrocephalus, normal pressure hydrocephalus (NPH), encephalocele and Anencephaly).

This includes:

Health Specialists with expert condition knowledge to answer your health queries, help you prepare for medical appointments and give you OT and Physio advice.
Specialist Benefit Advisors to help you access the financial assistance you are entitled to.
Support and Development Workers (SDWs) who will help you through any of life’s challenges (common support requests cover care, housing, education, employment, equipment grants)
Early Intervention Workers who are dedicated to helping our 0-12 year old members to thrive and helping parents and families to navigate all of the ups and downs

...as well as...

Access to a network of friends and peers amongst our 12,000 + members
Invitations to virtual, regional and national events and support groups
Invitations to join virtual peer support networks and specialist closed zoom sessions
Option to join Shine Health Direct, our Home Delivery Service
A free copy of our twice yearly magazine ‘Together’

Register online now and once your form has been processed a Support and Development Worker will give you a call to introduce themselves to you.

Become a child or young person member (under 18) today

Need advice urgently?

If you need support or advice quickly, please ring our helpline on 01733 555988 (between 9am and 5pm Monday to Friday) and we can register you over the phone and connect you with the right person to help you.

Become a child or young person member (under 18)

About you as parent/carer

Parent/carer First name

Parent/carer Last name

Parent/carer Email

Preferred title

Parent/carer Phone

Country

Address

City/Town

County

Post code

Your main spoken language

What is your relationship to the child/young person?

Tell us about the child/young person

First name

Last name

Birthdate

Gender

Ethnic group

Main spoken language

If other, please state condition(s)

Do they have a shunt? If so, what type do they have?

If they have a shunt, is it programmable?

How did you hear about Shine?

Are you interested in hearing about ways to support the charity?

You can change the way you hear from us or withdraw your consent at any time by contacting us via the website or by calling us on 01733 555988.

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