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Continence Care services from Coloplast

Coloplast develops products and services that make life easier for people with intimate healthcare needs. Working closely with the people who use their products, Coloplast creates solutions that meet individual needs and improve quality of life in the areas of ostomy care, urology and continence care, and wound and skin care.

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New partnership boosts support for intimate care

Coloplast and Shine have forged a new partnership this year to support improved bladder and bowel care for people with spina bifida and hydrocephalus. Support across the year will include tailored events and information resources to help Shine members, their family, carers and healthcare professionals better understand how to ensure good health management and to access support available, including from Coloplast and Shine.

Underpinning the relationship, Coloplast has given a generous donation to Shine of £20,000.

Coloplast will be taking part or exhibiting at Shine events, and will keep their staff informed about Shine news, fundraising initiatives and volunteering opportunities.

Shine will keep members informed of new products and developments at Coloplast which may be of interest to them.

Shine and Coloplast will also be collaborating to produce new information, including production of literature and leaflets on continence and intimate care issues.

Coloplast recently sponsored a pilot information day on ‘Understanding Good Continence Care’ in Cardiff. Aimed at parents, carers and healthcare professionals, this pilot event focused on continence issues, treatments and solutions and guidance on bowel and bladder management for children and young people with spina bifida and/or hydrocephalus. The day was packed with practical information about helpful products and techniques, and details of where to go for help, including on managing psychological issues to do with personal care. The event proved a great success and the feedback gained will help to shape future events across England, Wales and Northern Ireland.

The Shine / Coloplast partnership will be exploring potential for other such events across the year, such as another Good Continence Care event and a Wellbeing Day.

“Listening to people who experience living with continence problems brought home the importance of addressing continence issues with parents and giving them the information to change their child's life.”

“We still have a long way to go to enable a person to have a quality of life which is as normal as possible.”

For more information about Coloplast products and services, please visit: www.coloplast.co.uk/SHINE

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Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

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Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

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Spina bifida occulta is a hidden form of spina bifida.

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