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Awareness Week 2016

This October, please #GoYellow and help Shine raise awareness for spina bifida and hydrocephalus.

Help us advocate for better, more accessible services for those with spina bifida and hydrocephalus. Every mention to your friends, every yellow event, every shout-out on social media makes a difference!

 

There are lots of ways to get involved. Want to help? Here's what you can do:

 

Take the Awareness Week Challenge!

  1. Monday 24 October: #GoYellow on your social media profiles. Change your profile picture to this image and help us spread the word.
  2. Share our bouncing ball on social media! Go to facebook.com/shineukcharity or twitter.com/shineukcharity
  3. Share your story! Help us demonstrate what it's really like to live with spina bifida and hydrocephalus, and tell us your story. !

Share on socials!

We're posting on our social media pages all through October, and we really need your help to get the message out there. Like and share our posts, and show your support! Check us out on facebook.com/ShineUKCharity or twitter.com/ShineUKCharity


#GoYellow and do some fundraising!

Contact our Fundraising Team on T: 01733 555988 or E:  or go to our fundraising pages on the website for some inspiration.


Donate now 

Click here, or signpost your friends to shinecharity.org.uk/donate. Every donation, however small, however large, has the potential for profound impact. You can also text to donate, just text YELO42 £4 to 70070 to donate £4.


Join us! 

For events in your local area, contact your local Shine representative, or the main office on T: 01733 555988.

  • 25th October: National buildings all over the UK will be lighting up in honour of World Spina Bifida and Hydrocephalus Day - join us at Cardiff City Hall, St George's Hall, Liverpool, Belfast City Hall, and the Leeds Arena. The National Library of Wales, Aberystwyth is kindly lighting up for the whole week!  In Peterborough, we'll be out and about in the city centre, so watch out for some yellow t-shirts floating about!
  • 28th October: We'll have a stand on Bridge Street in Peterborough city centre raising awareness, so look out for our bright yellow tent and t-shirts and come and say hello!

Whatever you do, please join us this October - shout loud, feel proud, and #GoYellow!

    • Awareness Week 2016 - Join Us
    • aw16 coffee morning
    • aw16 dress down day
    • aw16 fun run
    • aw16 new hair do
    • aw16 pub quiz
    • aw16 teddy bears picnic
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Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.

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