In Your Own Words
Getting the right facts about any medical condition is important for managing your health and wellbeing. But facts only give you part of the story. Spina bifida and Hydrocephalus are complex conditions, and each person experiences them differently.
So what is it really like to live with spina bifida and hydrocephalus? Read some of our members stories to find out, in their own words...
Ali has spina bifida. She's an active participant in our Shine40Plus group, and the author of a series of stories, titled 'Dear Body', which illustrate the frustrations, and the positives, of living with spina bifida and hydrocephalus.
Brett has spina bifida and hydrocephalus. He's a writer, a wrestling fan, and a bit of a music buff, and says that despite the "limits" the world might see, he doesn't feel limited at all.
Kerry's daughter Megan has hydrocephalus. Megan was diagnosed shortly after her birth and had her first shunt operation at just 3 days old. Kerry tells us a bit about what it was like in those first few anxious months, and how proud she is of the young woman Megan is today.
Want to share your story?
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