We provide specialist support pre-birth and beyond for anyone living with spina bifida, hydrocephalus and associated conditions, as well as to parents, families, carers and professional health and social care staff.
We work on a national level to provide these services through the following specialist service teams:
Through our regional structure these teams are accessible in your area and once contacted we will do everything possible to ensure that you receive all the information and support you need.
Shine employs a team of Support and Development Workers in England, Wales and Northern Ireland.
Support and Development workers are on hand to help you make informed choices. They can contact you by telephone, e-mail, text message or even Facebook messenger.
Shine’s Education Advisers know all about the challenges of getting a good education – from getting your child into the right school, ensuring good support at school, and managing changes such as moving from primary to secondary and going to college or university. We are here to help.
Working with parents, children and teachers, the education advisers ensure that the best support for children with spina bifida and hydrocephalus. For example, ensuring good access and support for children whose mobility is affected by spina bifida, or that the effects hydrocephalus can have on memory, concentration, organisation and behaviour are recognised so that children can achieve their potential.
You can also find support on line by visiting our education section
Health Development Team
Keeping healthy means individuals and families can spend more time enjoying life. Shine’s Health Development Team have more than 40 years’ experience between them - advising on the best options for keeping healthy.
They also understand the worries, concerns, frustrations and possible problems you might face and what you are dealing with.
Advising at NHS clinics, arranging training events for Shine members, writing new health information, giving one-to-one advice to individuals, parents, pregnant women, relatives, carers and fellow professionals, or giving 1-1 consultations at Shine’s Health Hub – are all part of a day’s work for the Health Development Team.
If you, or someone you care for, have any of the conditions Shine covers, contact our Health Development Team with your questions on health matters.
Shine’s new Disability Benefits Advisory Service aims to help more members access key disability benefits.
The new service is open to all members and will offer specialist advice and one-to-one support.
Whether you are a new parent looking after children with multiple needs at home and at school, a young adult at college, work or setting up a home, or someone coping with later in life issues, the new Disability Benefits Advisory Service is here to support you.
