Shine's Live Session Archive - Parents and Carers

Don't miss out!

Catch up now on any of our publicly broadcast live sessions below, or check out the events listing for details of our upcoming events.

Better bowel and bladder management - engaging your child in self care

Originally broadcast on Thursday 29th October, this session contains useful tips and advice on how to optimise bladder and bowel management for your little stars.

Caring now and in the future

Originally broadcast on Thursday 26th November 2020 we look at what carers need to consider both now and for the future including Carers Rights, Power of Attorney, Self Advocacy, Forward Planning. This session will be presented by Beth Evans, from CarersUK.

Better healthcare - Screening and how to use our letter to GP's

Originally broadcast on Friday 30th October, in this session we discuss the findings from our groundbreaking '1000 Voices' survey, what we've learned, and our top tips and advice for better healthcare, including tips on how to get the most out of our new letter, written especially for GP's.

Better finances - Personal finance, budgeting and benefits

Originally broadcast Tuesday 27th October, this session contains information for people living with spina bifida and hydrocephalus, about the need for better personal financial management, including practical tips on finance topics such as budgeting and benefits.

For Carers Looking After Yourself Q&A

Originally broadcast on Monday 7th December 2020 this session is presented by Positive Steps Physio and is for carers. It focuses on looking after yourselves so that you can look after others.

Shine's Guide to Better Skin and Tissue

Originally broadcast on Wednesday, 28th October 2020 this session covers the importance of prevention and early intervention to reduce the severity of developing skin problems.

Better Bodies - Shine's Guide to Exercise and Nutrition

Originally broadcast on Friday, 23rd October 2020 this session covers the importance and benefits of healthy living, including useful hints and tips to get you started.

Developmental Building Blocks

Originally broadcast on Friday 13th November 2020 this session looks at great hints and tips to understand and encourage developmental progress prior to walking.

Lymphoedema - What people with spina bifida need to know

Originally broadcast on Tuesday 26th January 2021 this session focuses on lymphoedema - what people with spina bifida need to know. This condition can affect babies, children and adults with spina bifida. We are joined by a guest speaker from Lymphoedema Network Wales.

Hydrocephalus and shunts

Originally broadcast on Monday 8th March 2021, this session focuses on shunts, and explains how to use a few resources that can be personalised, and contain useful information for you, your doctor and any medical staff who may need to care for you.

Living with hydrocephalus - headaches

Originally broadcast on Tuesday 9th March 2021, this session focuses on providing tips for living with hydrocephalus and managing headaches.

Living with hydrocephalus fatigue, sleep and exercise

Originally broadcast on Wednesday 10th March 2021, this session focuses on providing tips for living with hydrocephalus, managing fatigue and the benefits of sleep and exercise.

Living with hydrocephalus memory and concentration

Originally broadcast on Thursday 11th March 2021, this session focuses on providing tips for living with hydrocephalus and managing difficulties with memory, concentration, and information processing.

My child with spina bifida - children who walk all the time

Originally broadcast on Tuesday 27th October, this session contains useful tips and advice which will help you to inform your child's school about their condition, and needs.

My child and spina bifida - Children who are part time wheelchair users

Originally broadcast on Thursday 29th October, this session contains useful tips and advice which will help you to inform your child's school about their condition, and needs.

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