These videos have created for Spina Bifida Awareness Week,by real Shine members living with spina bifida and are shared on our Shine Voices platform for your information and enjoyment.
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Parents and carers I Children and young people I Adults I 40+
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Shine member Lauren talks openly about life with spina bifida occulta and why it's important to recognise that the condition affects everyone differently.
Shine member Simeon talks candidly about the impact of 'labels' and the impact of focusing heavily on 'disability' at the expense of a persons strengths, skills and character.
Shine member Terrance talks about the importance of a positive mindset and strong support network, and why he's glad to see an increased awareness of spina bifida.
Shine member Molly recalls her pain and frustration as her physical issues were dismissed until she was finally diagnosed with spina bifida occulta after an MRI scan.
Shine Member Christine talks about the importance of independence as she looks back on a life full of adventures and accomplishments.
Our youngest ever contributor, Mason tells us what he'd do to help people with spina bifida if he were Prime Minister.
We asked Shine members for their views on a range of topics for Spina Bifida Awareness Week 2021. Here's what Ayesha had to say on these important matters...