These videos have been made by parents and carers of children with spina bifida and hydrocephalus, shared on our Shine Voices platform for your information and enjoyment.
Click below to check out our other playlists:
Children and young people I Adults I 40+
Or click here for tips on how to create and share your own film.
Shine Voices. Stories by you, for you.
Shine Voices. Stories by you, for you.
Mum Louise tells us about her inspirational little boy, Noah, and what life is like raising a child with spina bifida and hydrocephalus.
Dad James tells us about his amazing little girl, Emblyn, and what life is like raising a child with spina bifida and hydrocephalus.
Darragh's Dad talks us through their experience during pregnancy and how Shine were on hand to support during those important early years.
James has various conditions, including hydrocephalus, and has been through a lot in life already, including multiple shunt revisions. James' parents tell his story...
Jack's parents talk about their experience of his hydrocephalus diagnosis and the early days of his life with the condition.
Mum Rebecca talks openly about her daughter's diagnosis with Hydrocephalus, how Shine helped her to connect with other families and professionals for support, and how this has helped Violet's development.
Harry's mum Caroline describes her experience at point of diagnosis and how together with her husband, they launched Harry's Hydrocephalus Awareness Trust which has produced wonderful resources for families in a similar situation.