These videos have been made by children and young people with spina bifida and hydrocephalus, shared on our Shine Voices platform for your information and enjoyment.
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Parents and carers I Adults I 40+
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Shine Voices. Stories by you, for you.
James has various conditions, including hydrocephalus, and has been through a lot in life already, including multiple shunt revisions. James' parents tell his story...
Isabella has hydrocephalus and tells her story about living with the condition and her recent shunt revision.
Shine member Lauren talks openly about life with spina bifida occulta and why it's important to recognise that the condition affects everyone differently.
Our youngest ever contributor, Mason tells us what he'd do to help people with spina bifida if he were Prime Minister.
We asked Shine members for their views on a range of topics for Spina Bifida Awareness Week 2021. Here's what Ayesha had to say on these important matters...
Jack's parents talk about their experience of his hydrocephalus diagnosis and the early days of his life with the condition.
Shine member Rachel gives a deeply personal account of her life as a young adult with hydrocephalus, challenges in school, and her aspirations for the future.
Shine bring young people together on Zoom to access peer support and make new friends.