These videos have been made by our pioneering 40+ group of adults with spina bifida and hydrocephalus, shared on our Shine Voices platform for your information and enjoyment.
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Parents and carers I Children and young people I Adults
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Shine Voices. Stories by you, for you.
Shine Voices. Stories by you, for you.
Shine Voices. Stories by you, for you.
Shine Voices. Stories by you, for you.
Shine Voices. Stories by you, for you.
Huw has hydrocephalus and describes methods he uses to help him with his memory. Huw tells his story...
Shine member Terrance talks about the importance of a positive mindset and strong support network, and why he's glad to see an increased awareness of spina bifida.
Shine member Molly recalls her pain and frustration as her physical issues were dismissed until she was finally diagnosed with spina bifida occulta after an MRI scan.
Shine Member Christine talks about the importance of independence as she looks back on a life full of adventures and accomplishments.
Having acquired hydrocephalus later in life, Reuben recalls receiving his diagnosis, and the impact it has made on his life personally and professionally.