Accessibility Options
Shine Logo

Tel: 01733 555988

Commitment to Quality Fundraising

Shine is registered with the Fundraising Regulator and is committed to maintaining high standards of fundraising in line with the Code of Fundraising Practice.

Shine is proud to commit to the Regulator's Fundraising Promise. This promise outlines the commitment made to donors and the public by fundraising organisations which register with the Fundraising Regulator. Those who register with the regulator agree to ensure their fundraising is legal, open, honest and respectful. The standards for fundraising are set out in the Code of Fundraising Practice.

  1. We will commit to high standards.
  2. We will be clear, honest and open.
  3. We will be respectful
  4. We will be fair and reasonable
  5. We will be accountable and responsible

For the full text of the Fundraising Promiseplease click here.

The Fundraising Regulator's role is to:

  • Set and promote the standards for fundraising practice (‘the code’ and associated rulebooks) in consultation with the public, fundraising stakeholders and legislators.
  • Investigate cases where fundraising practices have led to significant public concern.
  • Adjudicate complaints from the public about fundraising practice, where these cannot be resolved by the charities themselves.
  • Operate a fundraising preference service to enable individuals to manage their contact with charities.
  • Where poor fundraising practice is judged to have taken place, recommend best practice guidance and take proportionate remedial action.

For more information about the Fundraising Regulator, please see their website: www.fundraisingregulator.org.uk.

For clarification regarding the Fundraising Regulator and our fundraising work at Shine, please contact Denise Fenn, Director of Fundraising and Communications on T: 01733 555988 or E: .

News

New Educational Lead shares her heart for families and schools

Shine is delighted to welcome Jan Tippett as its new Education Lead. Besides being…

Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.

Share

Report an issue