Spina Bifida Awareness Week is supported by:
Enable Law and Davies and Partners
Shine celebrates Spina Bifida Awareness Week in October each year. This important week helps us highlight the condition, what it means to live with spina bifida, and what support Shine can offer. We'd love you to be part of it! There are always plenty of opportunities to join in and get involved in celebrating our spina bifida community in the lead-up to and throughout the week.
If you, a friend or a loved one has just had a diagnosis for a type of spina bifida, or you are looking for more information on the conditions and treatment options, then we have a hub of resources dedicated to spina bifida and support we can provide to you.
Our new resource - Understanding Spina Bifida in Adults - will soon be available to order!
Let us know you'd like a copy by filling in your details here, and we'll be in touch when it's available to buy.
This new resource is a comprehensive guide for individuals, families, and healthcare professionals. A great amount of planning, research and gathering contributions from experts in the fields of health and spina bifida has gone into making this guide possible. A huge thank you must go to Shine’s Health Team (especially our Head of Health, Gill Yaz, who led on production) and our Health Advisory Panel who, between them, spent many hours writing, reviewing and quality assuring the information. And of course, a thank you to all the Shine Members who responded to our survey and shared so much about their lives and the effects of living with spina bifida.
Join us during the week of 20-26 October 2025, and help us celebrate our wonderful community. There are lots of ways you can get involved...
Our goal is to show what living with spina bifida is like - what it is really like - at all ages and stages of life. And who better to show it than you! We'd love to share some of your thoughts and experiences.
Here are a few prompts to get you started:
Contact us if you have something you would like to share. It can be an anonymous quote, or a full story.
Remember, only share what you're comfortable with us sharing publicly on Shine’s social media channels, and make clear any details you want us to keep private.
During the week, we have information sessions and social events for you to come along to, both virtual and face-to-face. We'll email and post on our social media with updates, and you can also find out what's coming up on our website and sign-up to come along.
Of course, awareness is just one part of the week, Spina Bifida Awareness Week is also a great time to come together to fundraise. Not only does fundraising help Shine continue to support the spina bifida community, it also amplifies our voices when raising awareness.
Our lovely team at Shine really do put the 'fun' in fundraising, and they have lots of inspiration if you're keen to get involved - check it out here.
Share your support for Spina Bifida Awareness Week with your networks. We have a small selection of banners, posts, and reels to make up your social kit:
Don't forget to tag us in your posts using @shineukcharity or use the hashtags #spinabifida #awareness #livingwithspinabifida
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