Shine offer a range of useful resources and publications to help you learn more about hydrocephalus, and to help you communicate with others about the condition.
We also have resources available if you'd like to fundraise for Shine during Hydrocephalus Awareness Week, click here for more information.
'Get Inside My Head'
This short animation offers an easy to understand explanation of the condition, perfect for helping others to understand more about hydrocephalus.
If you'd like to share this video with someone, you can copy and paste this link into an email or text message - www.youtube.com/watch?v=o1Y7zcPyFsY
What is Hydrocephalus?
An introduction to hydrocephalus containing essential information. Perfect if you want to learn more about the condition, or help those around you to understand it better.
Download What is Hydrocephalus?
New Parents Pack
Shine’s resource pack for parents and families of babies with hydrocephalus covers everything you need to know during those important first few months.
Your Child and Hydrocephalus
A comprehensive look at the condition covering everything you need to know at every key life stage from birth to 11 years old. Perfect for parents and professionals.
Download Your Child and Hydrocephalus
'Hydrocephalus and Me' Card
Personalise this card and carry it with you to help explain what symptoms you have, and what those around you at school, college or university can do to support you.
Watch this short video for instructions on how to use your card, and ideas for what to include on it.
Order your Hydrocephalus and Me card
Shine's Hydrocephalus Services
Find out about the specialist support Shine offer throughout your child's life. As well as supporting you directly, Shine can also work with your friends, family or connected professionals in health, education or social care.
Download Shine's Hydrocephalus Services
The Abilities in Me - Hydrocephalus Edition
Help your child to understand more about their condition, with the Hydrocephalus edition of the successful 'Abilities in Me' series by author Gemma Kier. Watch our video below, or order your copy today, with a share of the profiles kindly donated to Shine.
Benny Bear Books
Help your child learn about their condition through the adventures of Benny Bear. Through these fun engaging tales, your child will discover all about hydrocephalus and what makes life better at school and at home.
Toilet Training
Learn more about the unique challenges children with hydrocephalus can face, and how you can help them to master this all important skill.
'Hydro and Me' Website
Developed by Integra LifeSciences, Hydro and Me is a website containing information about the condition, as well as useful features including a kids corner, and a centre locator tool should you need support with an Integra shunt valve whilst travelling.
Visit the Hydro and Me website
General Shunt Malfunction Alert
Do your child’s friends, family or social group know what to do if a shunt malfunction occurs? This Education Medical Alert Leaflet contains health and safety tips, what to look out for, and what actions to take which are applicable for anyone who has caring or supervision responsibilities for your child.
Click here for our General Shunt Malfunction Alert
Shunt Alert Card
This personalisable medical alert card contains useful information for your child's doctor and any other medical staff who may need to care for them in the event of an emergency.
Hospital Passport
Should your child ever be taken into hospital, a hospital passport contains all the key information professionals will need to give them the best possible care. You can fill it out online and save it to your mobile device for ease of access.
Find out more and complete your hospital passport
Headache and fluid diaries
A headache diary can be a good way to keep track of your child's headaches, symptoms and treatment.
Download headache and fluid diaries
Endoscopic Third Ventriculostomy (ETV)
In some people, hydrocephalus can be treated with an operation called an Endoscopic Third Ventriculostomy (ETV). We’ve created a new downloadable resource with all the key information you might need for living with hydrocephalus and an ETV.
Shunt Malfunction Alert for Schools, Colleges and University.
Does your child's school know what to do if a shunt malfunction occurs? This useful guide contains health and safety tips, what to look out for, and what action to take if they suspect shunt malfunction or similar has occurred.
Download shunt malfunction alert for education staff
Letter for schools
Want to help your child's school learn more about hydrocephalus? This letter can be personalised and includes an introduction to the condition as well as details of how Shine can support them to empower your child throughout their education.
Tips for Teachers
Share this link with your child's teacher and give them access to lots of useful advice on how to provide the best possible learning environment for children with hydrocephalus.
Click here for our tips for teachers
Education Passport
Complete, along with your child, to capture and communicate their needs in one simple to use document which can be shared with their current or proposed education setting. You can print one out, or complete it online and save to your device.
Complete an Education Passport
Hydrocephalus and Learning Leaflet
A guide for children and young people with hydrocephalus - with useful tips and ideas to help you at school
Download Hydrocephalus and Learning