Shine offer a range of useful resources and publications to help you communicate with healthcare professionals and share information about hydrocephalus which can help them to better meet your needs.
Your Child and Hydrocephalus
A comprehensive look at the condition covering everything you need to know at every key life stage from birth to 11 years old. Perfect for parents and healthcare professionals.
Download Your Child and Hydrocephalus
What is Hydrocephalus?
An introduction to hydrocephalus containing essential information. Perfect for helping healthcare professionals, who are new to hydrocephalus, to better understand your condition.
Download What is Hydrocephalus?
'Hydrocephalus and Me' Card
Personalise this card and carry it with you to help explain what symptoms you have, and what healthcare professionals can do to support you.
Watch this short video for instructions on how to use your card, and ideas for what to include on it.
Order your Hydrocephalus and Me card
Hydrocephalus and Shunts - What you need to know
Want to help your GP understand more about your hydrocephalus? This useful guide contains health and safety tips, what to look out for, and what action to take if they suspect shunt malfunction or similar has occurred.
Click here for information about hydrocephalus and shunts
Letter for General Practitioners (GPs)
Want to help your GP learn more about your hydrocephalus? This letter can be personalised and added to your file - it explains more about your condition and the health implications they need to be aware of.
Shunt Alert Card
This personalisable medical alert card contains useful information for you, your doctor and any medical staff who may need to care for you in the event of an emergency.
Hospital Passport
Should you ever be taken into hospital, a hospital passport contains all the key information professionals will need to give you the best possible care. You can fill it out online and save it to your mobile device for ease of access.
Complete your hospital passport
Headache and fluid diaries
A headache diary can be a good way to keep track of your headaches, symptoms and treatment.
Download headache and fluid diaries
Endoscopic Third Ventriculostomy (ETV)
In some people, hydrocephalus can be treated with an operation called an Endoscopic Third Ventriculostomy (ETV). We’ve created a new downloadable resource with all the key information you might need for living with hydrocephalus and an ETV.