Accessibility Options
Shine Logo

Tel: 01733 555988

    • img 2718v2 1000x667

Being a carer and support you can access



Three in five people in the UK will become carers at some point in their lives.

Definition of 'carer'

A carer is someone who looks after and supports a friend, relative or neighbour who could not manage without their help. This could be due to age, physical or mental illness, or disability.

It does not mean a professional care-worker or personal assistant who gets paid for their work.

Directgov

The Coalition Government has allocated Carers £400 million to take a break.

Announcing the funding, care services minister Paul Burstow said, ‘The Coalition Government’s vision for social care will deliver on our manifesto commitment to provide guaranteed respite care by making over £400million available in additional funding over the next four years to the hundreds of thousands of carers who work over 50 hours a week.’

This announcement, on the face of it, is very good news, however there is a risk that the money might not be used for its intended purpose as it is not ring-fenced. 

The Princess Royal Trust for Carers commented, ‘In 2009-10 and 2010-11, £150 million was pledged for carers' breaks, but our research found that most primary care trusts failed to spend the money on carers and instead used it elsewhere.’

The PRTC is launching a campaign urging carers and supporters to contact carer centres and their MPs, asking Primary Care Trusts to publish plans and to spend as much as possible on carer breaks.

News

New Educational Lead shares her heart for families and schools

Shine is delighted to welcome Jan Tippett as its new Education Lead. Besides being…

Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.

Share

Report an issue