Accessibility Options
Shine Logo

Tel: 01733 555988

Supporting Children With Special Educational needs in school

    • education care plans

Education - England

Shine’s Education team previously highlighted proposed Government changes to the ‘statementing’ process in England from September 2014 so what do we know so far?

  1. Changes are being made to the way children with special educational needs are being supported, as part of the Children and Families Act. These changes include gradually transferring children and young people from statements to Education, Health and Care plans (EHC plans). This will require Local Authorities and Health bodies to work in partnership. Local Authorities will also publish a ‘local offer’ of services, to will provide information on what services children, young people and their families can expect from a range of agencies.
  2. EHC plans will encompass children and young people in education who require additional support and/or training up to the age of 25. This will ensure that education and training providers will have a duty to meet additional needs for those children or young people who have an existing statement and who wish to go onto further education or training.
  3. EHC plans will only apply to children and young people who are (or would be) ‘statemented’. Families will be entitled to request the support of an Independent Supporter to help them through the process.
  4. EHC plans are being phased in over the next 3 ½ years. This means that if your child currently has a statement, the arrangements in the statement will continue until your next Annual Review.
  5. The Children’s and Families Act states that Local Authorities need to take the views of children and young people with special educational needs and disabilities and their families into account, particularly in relation to the support they are given.

Further information

Shine’s Education team in England will be building up their knowledge and expertise of EHC plans, offering specialist support and advice on how you can get the best out of the new process to support your child’s education and training.

A number of organisations across England have been funded by the Government to play a role in reforming and delivering services for disabled children, young people with special education needs and their families. All Local Authorities must have an Information, Advice and Support Service for special educational needs and disabilities (SENDIASS) to provide information on the changes and processes, and Independent Supporters if requested.

Contact details for organisations in your area are listed on the Council for Disabled Children website

Special Educational Needs in Wales.

Wales are proposing changes to the law covering special educational needs (SEN) which will apply to young people up to the age of 25. As yet, there is little detail on the changes or the timescale for their introduction but we will be keeping a watchful eye!


Fun for All the Family at Two Day Abseil Event

Pictured: Shine fundraiser Georgia Kelly, Heart FM's Kev Lawrence and Peterborough Cathedral events manager…

Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously.

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected.

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.


Report an issue