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Tel: 01733 555988

Health Development Team

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    • Health Team

Keeping healthy means individuals and families can spend more time enjoying life. Shine’s Health Development Team have a total of over 40 years of experience - advising on the best options for keeping healthy.

They also know about all the worries, concerns, frustrations and possible problems you might face and will understand what you are dealing with.

Attending NHS clinics, where they help other professionals to focus on the whole person (not just their condition), writing information leaflets on health topics, giving one-to-one advice to individuals, parents, pregnant women, relatives, carers and fellow professionals – are all part of a day’s work in the Health Development Team.

They also share in the celebrations when everything turns out well in the many happy and successful outcomes they help you to achieve.

The Health Development Team can help with:

  • Planning a pregnancy – for folic acid advice and how this reduces the risk of spina bifida
  • During pregnancy, if you are told your baby has spina bifida, hydrocephalus or anencephaly.
  • At any time when you or a member of your family gets a diagnosis – whether as a baby, child or adult.

On medical matters including;

  • shunts and ETVs (endoscopic third ventriculostomy)
  • bowel and bladder issues
  • skin care
  • tests and treatments for spina bifida or hydrocephalus
  • advising on second opinions
  • helping with issues around depression or anxiety
  • effects of ageing
  • orthopaedics
  • sexual health

If you, or someone you care for, have any of the conditions Shine covers, contact our Health Development Team with your questions on health matters.

For more information about spina bifida or hydrocephalus, NPH, IH, anencephaly or any of the above – phone our team on 01733 555988 or email and request an information sheet or ask to speak to a member of the team.

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Did You Know?

Some babies with spina bifida are now operated on before they are born, via keyhole surgery.

Hydrocephalus can be congenital or acquired.

NPH (Normal Pressure Hydrocephalus) is an excessive build-up of fluid in the head.

Hydrocephalus is a build up of excess fluid in the brain.

Some 11 - 35% of people with Intracranial Hypertension recover spontaneously!

Most babies with spina bifida undergo surgery within 48 hours of birth.

“Every effort should be made to ensure that all children are immunized, no opportunity to immunize should be missed.”

If you have spina bifida +/or hydrocephalus you should receive the same vaccinations as any others, when going abroad.

Hydrocephalus comes from the Greek "hydro" meaning water and "cephalie", meaning brain.

Some forms of hydrocephalus require no specific treatment.

Medical advice should always be sought if shunt infection is suspected!

Shunt: a device that diverts accumulated cerebro-spinal fluid around the obstructed pathways back to the bloodstream.

Possible signs of chronic shunt blockage include: 
fatigue, general malaise or behavioural changes.

A shunt alert card should be carried at all times by people with hydrocephalus treated by a shunt.

Possible signs of acute shunt blockage may include: visual disturbances, drowsiness and seizures.

Symptoms of Normal Pressure Hydrocephalus are similar to Alzheimer's, Parkinson's disease or simply increasing age.

NPH (Normal Pressure Hydrocephalus) occurs most often in people aged over 60.

Benign Intracranial Hypertension aka Idiopathic Intracranial Hypertension affects about one or two in every 100,000 people!

Symptoms associated with raised intracranial pressure; headache, visual disturbances, photophobia, vomiting, problems with balance...

Diagnosis of Intracranial Hypertension is by scan + measurement of the CSF pressure.

Babies born prematurely are at increased risk of developing hydrocephalus.

Shine can raise money by recycling your used inkjet cartridges, toners or CDs and DVDs.

Para-athletes with spina bifida and hydrocephalus compete in sports ranging from cycling to dressage.

Hydrocephalus may affect memory, concentration and behaviour.

The usual treatment for hydrocephalus is to insert a shunt into the brain.

CSF stands for cerebro-spinal fluid.

Benny Bear is a teddy with hydrocephalus who helps children understand the condition.

Shine is always looking for Marathon Runners to help with fundraising.

Spina bifida occulta is a hidden form of spina bifida.

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