We've written 15 newsletters which will be emailed to you between your child’s birth and the final one as your child turns 10 years of age.
The newsletters are for you and your child, and include advice and support about their condition and how it might affect them. We over health and wellbeing, development, benefits, education and provide links for further reading, all delivered to your inbox when you need them.
In the meantime, you can also find help and support from us and from other parents in lots of other ways:
We would like to thank The National Lottery Community Fund who have made the development of these newsletters possible.