Register now for regular Little Stars Newsletters

We've written 15 newsletters which will be emailed to you between your child’s birth and the final one as your child turns 10 years of age.

The newsletters are for you and your child, and include advice and support about their condition and how it might affect them. We over health and wellbeing, development, benefits, education and provide links for further reading, all delivered to your inbox when you need them. 

Subscribe to our newsletter

Register below to receive our regular updates.

Shine would like to contact you with information about our work, which may include:
  • To notify you of news, research and developments relevant to your child's condition
  • To invite you to events where you can meet and connect with professionals and peers
  • To share good news and success stories from the Spina Bifida and Hydrocephalus communities
  • To seek your views on upcoming plans and projects

In the meantime, you can also find help and support from us and from other parents in lots of other ways:

  • Join Shine’s Little Stars Facebook Group here
  • Join one of our 26 county based WhatsApp groups, email here to join
  • Watch videos to learn more about your child’s condition and how it affects them
  • Book on to our weekly closed Zoom parents sessions, themes include starting school, sensory play, sleep solutions, first aid etc, email us and we can provide you with the latest timetable and links to join
You can contact us by return email at or telephone Shine HQ on 01733 555988. We look forward to hearing from you.


We would like to thank The National Lottery Community Fund who have made the development of these newsletters possible.

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