What we do

Shine’s Little Stars programme supports children aged 0-12 years old with spina bifida and/or hydrocephalus, as well as their parents and carers.

Using the knowledge and expertise of our specialist health, education and welfare teams, we offer proactive support throughout children's lives.

Click here to receive regular newsletters from the Shine's Little Stars team.

How to get started...

Parent Packs

Written by our expert health team, Shine’s resource packs for parents and families of children with spina bifida and hydrocephalus cover a wide range of issues from birth to age 12.

Download your copy today

What is spina bifida?

Spina bifida literally means ‘split spine’. A fault in the development of the spinal cord and surrounding bones (vertebrae) leaves a gap or split in the spine. The spinal cord has not formed properly, and may also be damaged.

Learn more about the condition

What is hydrocephalus?

A build up of fluid on the brain, hydrocephalus can have a range of physical and cognitive effects. Click here to learn more about the condition, how it occurs and its many different forms.

Learn more about the condition


Shine's Little Stars project is delivered with the kind support of the National Lottery Community Fund

Hydro and Me - Kids Corner

Integra LifeSciences developed their own Hydrocephalus microsite, containing lots of useful information, as well as an interactive kids corner where fans of Benny Bear can read his stories, do jigsaw puzzles and download colouring sheets.

Try it out

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