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New celebrity recipe book aims to give A Good Helping!

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    • Rebecca Morris and Danny Mills
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The Duchess of Gloucester, Baronness Tanni-Grey Thompson and Downton Abbey stars Elizabeth McGovern and Jim Carter are among a host of celebrities who have been inspired to share their favourite recipes by a young woman whose life was changed forever by a rare…

£2m Groundbreaking Hydrocephalus Research Project

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    • medical research
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Neurological specialists in Liverpool are leading a groundbreaking research project which could significantly impact upon the treatment of children and adults with hydrocephalus. Neurosurgeons from Alder Hey Children’s Hospital and The Walton Centre will be the chief investigators for the study, which has…

A forgotten generation is coming out of the shadows!

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Shine’s Silver Dreams project aims to reach out to people with spina bifida and/or hydrocephalus in the 50+ age group so that they can share their experiences. We'll be building up a body of information and expertise about getting older with these rare…

New Vitamin B12 advice could help to prevent more Neural Tube Defects says report

    • vitamin b12 news
A new report by a world authority on vitamin B12 calls for all women who may become pregnant to follow updated pre-conceptual supplement recommendations, which could further reduce the number of pregnancies affected by Neural Tube Defects (NTDs), such as spina bifida and…

World Spina Bifida and Hydrocephalus Day – but who cares?

    • Ahmed Ali
Thousands of babies with spina bifida who were born in the last century, and expected to die before they grew up, are being sold short as adults because they have lived too long, according to a national charity. To mark World Spina Bifida…

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