'Spina Bifida and Me' Cards

Order your free 'Spina Bifida and Me' card today, and help those around you to understand what support they can offer you to help with the effects of your condition.

Order your Spina Bifida and Me card

 

Spina bifida affects people in many different ways, and to differing extents. Some of the effects of spina bifida might not be visible, but still affect day-to-day life. We’ve designed the Spina Bifida and Me card so you can let others know about any aspects of your condition you would like them to be aware of. This might include, for example- 

Spina bifida means that I might:

  • find it hard to stand for long periods of time
  • need support to get up if I fall
  • live with pain every day
  • not be able to wait in a queue for the toilet - it’s always urgent!
  • prefer to use use a wheelchair for long distances rather than trying to walk
  • need to sit on public transport because my balance is affected
  • need to be told information more than once to take it in
  • benefit from support to keep organised or motivated
  • not notice that some assistance would be helpful - It’s OK to offer assistance, I might accept or might decline. 
     
    Please feel free to add in anything you’d like others to be aware of, it’s up to you how you use this, or whether you wish to use it at all 

 

 

Order your Spina Bifida and Me Card

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Shine would like to contact you with information about our work, which may include:

• To notify you of news, research and developments relevant to your child's condition

• To invite you to events where you can meet and connect with professionals and peers

• To share good news and success stories from the Spina Bifida and Hydrocephalus communities

• To seek your views on upcoming plans and projects If you are happy to be contacted, please tick the box.

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