Your stories
29th October 2019
I have many equally proud moments in my lifetime. Having a career with Leicestershire Police and ultimately writing a book about my journey with Spina Bifida from 1961 to today and seeing my published story in print.
What was your main reason for joining Shine?
To connect with people who understand about Spina Bifida, and the ups and downs, highs and lows, of living life with the condition. My father was one of the original committee members for the Leicestershire Association for Spina Bifida and Hydrocephalus in the 1960’s (LASBAH) so Shine Charity has always been a part of my life.
What ways has Shine helped you?
By connecting me with others in similar situations and giving me the opportunity to talk to people who understand spina bifida. By giving me a platform to share my experiences with others and allowing me to be inspired by other people’s stories and experiences. Shine has also supported me by giving me opportunities to promote my story which is told in a book I have published this year - ‘Crotch Height Perspective; It’s Just The Way It Is’
What’s your proudest moment so far?
I have many equally proud moments in my lifetime. Giving birth and raising three sons who are now all grown up. Having a career with Leicestershire Police and ultimately writing a book about my journey with Spina Bifida from 1961 to today and seeing my published story in print. I am also immensely proud every time someone tells me my book has helped them or that they see me as a positive inspiration.
Why is Shine important?
Shine connects me with others in similar situations and gives me the opportunity to ask questions and explore further opportunities. It enables those with spina bifida, and those who have a family member with spina bifida, and/or hydrocephalus, to learn more about the conditions in their own time by exploring all the information, support and help available.
What have you learned most about yourself as a person?
I have learned that I am Steph who has spina bifida, but I am not disabled Steph. The disability does not define me. The opportunities are endless if you are just prepared to adapt. Just because I can’t do something in the “normal” way, that doesn’t mean it can’t be done. It’s about having the confidence to find ways that work for me and being realistic about my expectations.
If you've been affected or inspired by our member's stories, you can help Shine support more people just like them by making a donation today. Your donation will help Shine support our members live life to the full and provide vital information for new members at a crucial stage in their lives.