21st January 2020


Raising awareness about this hidden neuro-disability, affecting learning in educational settings.

Welcome to Shine’s information and strategies sessions for education professionals, SEND teams and parent / carers about:

  • the causes of and treatments for hydrocephalus
  • raising awareness of how hydrocephalus can affect learning

Hydrocephalus is a condition affecting the brain, which develops when the complications of a medical condition, like a stroke, cyst, tumour, genetic condition, infection, a form of spina bifida, head injury or an unknown event, cause cerebrospinal fluid (CSF)in the brain, to build up in and around the brain to a dangerous level.

  • 1 in 1000 babies are born with hydrocephalus 
  • Hydrocephalus is the most common reason for a child to have a brain operation
  • A brain operation to control hydrocephalus is performed every 15 minutes in the developed world
  • 1 in 10 people with dementia have hydrocephalus
  • 1 in 100 older adults develop normal pressure hydrocephalus

In 2020 to raise awareness about hydrocephalus Shine is organising 8 twilight seminars, commencing in February from 3pm to 6.30pm across England:

  • Tuesday 11th February in Liverpool at the Brain Charity L3 8LR
  • Thursday 13th February in Birmingham at Irwin Mitchell offices B4 6AT
  • Tuesday 10th March in Cambridge at Irwin Mitchell offices CB2 1PH
  • Wednesday 11th March in Sheffield at Irwin Mitchell offices S3 8DT
  • Tuesday 31st March in Newcastle at Irwin Michell offices NE1 4TD
  • Wednesday 22nd April in London at Irwin Mitchell offices EC1N 2PZ
  • July - date and venue to be confirmed in Hull
  • July - date TBC in Southampton at Irwin Mitchell offices SO15 2AQ


  1. Enhance knowledge and understanding of the condition and its effects on learning
  2. Raise awareness of difficulties children and young people face in schools
  3. Find out about strategies for teaching and learning in the classroom, including helpful technology and positive behaviour support.

If you would like to book a place on an information session, then please contact Shine charity: 01733 555988 or email:

Places are limited so early booking is advised


3 to 3.30 pm

Registration, welcome, refreshments and meet Shine staff, Clinical nurse specialists, education professionals and parent carers.

3.30pm to 4.30 pm

Presentation by a CNS hydrocephalus nurse from local children’s hospital - What is hydrocephalus? How is hydrocephalus treated? What effects can hydrocephalus have on a child’s development?

Q&A with Hydrocephalus nurse

4.30 pm – 4.45 pm

Short break for networking

4.45 to 5.15 pm

Parent’s experience of having a child with hydrocephalus

The experience of a young person with hydrocephalus

5.15 to 6.15 pm

Presentation by Shine team about learning differences, classroom strategies, inclusion, behaviour management and helpful technology

6.15 to 6.30 pm


Networking opportunities

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