Your stories

Hydrocephalus Awareness Week 2020 - Lennie

12th February 2020

 

Lennie's Story...

Hydrocephalus doesn’t stop you
from doing the things you enjoy

Lennie was born 10 weeks early and experienced bleeds on both sides of his brain. Consequently he has both Cerebral Palsy and Hydrocephalus and a VP shunt inserted at 7 months.

Shine has been a great help and support to us as a family over the last few years. I've contacted the health team regarding shunt advice and have found them helpful and knowledgeable.

The education team have also been supportive, and are both lovely and extremely knowledgeable.

Lennie has lots of challenges and always will require support in many aspects of life. We don't allow those challenges to be barriers to a full and exciting life however.

He loves to play the piano, swim and race run. He even surfed last summer and was joint winner for The Surfer of the Year with a Disability Award at the WP Awards 2019 from Wave Project!

Skiing is next on the list!

A hydrocephalus diagnosis can be daunting and scary. It really helps that Shine is there with knowledge, support and help in meeting other families with similar experiences.

 

Support Shine members by donating today...

If you've been affected or inspired by our member's stories, you can help Shine support more people just like them by making a donation today. Your donation will help Shine support our members live life to the full and provide vital information for new members at a crucial stage in their lives.

Donate today

Related Stories

Donate Become a member

Our cookies

We use cookies, which are small text files, to improve your experience on our website.
You can allow or reject non essential cookies or manage them individually.

Reject allAllow all

More options  •  Cookie policy

Our cookies

Allow all

We use cookies, which are small text files, to improve your experience on our website. You can allow all or manage them individually.

You can find out more on our cookie page at any time.

EssentialThese cookies are needed for essential functions such as logging in and making payments. Standard cookies can't be switched off and they don't store any of your information.
AnalyticsThese cookies help us collect information such as how many people are using our site or which pages are popular to help us improve customer experience. Switching off these cookies will reduce our ability to gather information to improve the experience.
FunctionalThese cookies are related to features that make your experience better. They enable basic functions such as social media sharing. Switching off these cookies will mean that areas of our website can't work properly.
AdvertisingThese cookies help us to learn what you're interested in so we can show you relevant adverts on other websites and track the effectiveness of our advertising.
PersonalisationThese cookies help us to learn what you're interested in so we can show you relevant content.

Save preferences