Your stories

Hydrocephalus Awareness Week 2020 - Steve

12th February 2020

 

Steve's Story...

Hydrocephalus is not predictable -
take each day as it comes.

I was diagnosed with hydrocephalus at about age 45, had 10 brain surgeries and spent over 12 months in hospital.

I am ex-army and had a very active and sporty person, but that was suddenly taken away from me.

No-one knows how it happened, I was in a sort of coma unable to move or eat or drink, I was just laying in a hospital bed being peg fed.

One day it felt like I woke up and realised where I was, in a hospital, and I thought that I had better get myself out of this situation.

After a very hard and long struggle, I learned to walk again, however, I was told I would never get out of a wheelchair.

I achieved just that and a mountain of other things, so what I tell everyone who is down and in a rutt -

It may not be easy but you can adapt and overcome.

You CAN do it never say never.

Good luck on your journey.

I can cope with living with hydrocephalus. I have a great understanding wife beside me also my mum and family have been so supportive.

 

Support Shine members by donating today...

If you've been affected or inspired by our member's stories, you can help Shine support more people just like them by making a donation today. Your donation will help Shine support our members live life to the full and provide vital information for new members at a crucial stage in their lives.

Donate today

Related Stories

Donate Become a member