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Hydrocephalus Awareness Week 2021 - Nigel's Story

5th March 2021


Nigel's Story...

"Shine has also helped me realise that I am not the only one with this condition."

What was life like before you received support from Shine?

"Life before I received support from Shine was very different to now. I was living at home at the time and had a lot of support from my family, but I didn’t know an awful lot about hydrocephalus. Nobody really explained how it would affect me. I thought that this was just ‘my normal’ and I put it (memory loss) down to being stupid. I used to blame myself for a lot of things but I should have been blaming the hydrocephalus."

How has Shine supported you?

"Since getting involved with Shine, I have a better understanding of what hydrocephalus is and how it affects me. When I have a bad spell of forgetfulness or poor balance, I know now that it is down to the hydrocephalus and it’s not my fault. I have learned a lot over the years since getting support from Shine and now I use the internet to find out more information about my condition. 

Shine has also helped me realise that I am not the only one with this condition. I have been able to meet up (pre-covid) with others and I have realised that it isn’t as rare as I thought."

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