Your stories
5th March 2021
"Shine has also helped me realise that I am not the only one with this condition."
"Life before I received support from Shine was very different to now. I was living at home at the time and had a lot of support from my family, but I didn’t know an awful lot about hydrocephalus. Nobody really explained how it would affect me. I thought that this was just ‘my normal’ and I put it (memory loss) down to being stupid. I used to blame myself for a lot of things but I should have been blaming the hydrocephalus."
"Since getting involved with Shine, I have a better understanding of what hydrocephalus is and how it affects me. When I have a bad spell of forgetfulness or poor balance, I know now that it is down to the hydrocephalus and it’s not my fault. I have learned a lot over the years since getting support from Shine and now I use the internet to find out more information about my condition.
Shine has also helped me realise that I am not the only one with this condition. I have been able to meet up (pre-covid) with others and I have realised that it isn’t as rare as I thought."
If you've been affected or inspired by our member's stories, you can help Shine support more people just like them by making a donation today. Your donation will help Shine support our members live life to the full and provide vital information for new members at a crucial stage in their lives.