Your stories
7th March 2022
"I cannot say how grateful I was to have someone who understood what I was going through."
"In 2013 I had a routine GP appointment and mentioned headaches which I had had for some time, but put down to stress. I was a qualified nurse, social worker and practice teacher and my job as deputy manager of an adult mental health team was demanding.
I was sent for a scan and was shocked to be told I had chiari malformation and hydrocephalus. I was packed off to the Walton Centre and had ETV surgery. I was going through leaflets some weeks later and the neuro support centre in Liverpool put me in touch with Shine."
"I cannot say how grateful I was to have someone who understood what I was going through. A Shine Support and Development Worker supported me through occupational therapy appointments and was a great help with my PIP application. Debi has helped more recently with a supporting letter in support of my recent health change for my PIP claim. I have since had further surgery and now have a shunt. I enjoy the social Zoom activities the Shine Support and Development Worker Debi has organised especially throughout the last 2 years and during lockdowns. It is hard for everyone but knowing that there are people there who care and understand is super."
If you've been affected or inspired by our member's stories, you can help Shine support more people just like them by making a donation today. Your donation will help Shine support our members live life to the full and provide vital information for new members at a crucial stage in their lives.