Your stories

Hydrocephalus Awareness Week 2022 - Dolcee-Rae's Story

7th March 2022

 

Dolcee-Rae's Story... told by mum Charlie

"Receiving the welcome pack, the booklets, Benny Bear books etc. helped so much. I felt so much more informed. I started to read the information on the website and shared it with our extended family."

What was life like before you received support from Shine?

"I didn’t become a member of Shine when I was pregnant, I had so much information to take in. After Dolcee-Rae was born and she was in hospital I started to see posts on Facebook of someone else I knew with a little one with the condition, and she was sharing Shine’s information. I was so lost and unsure of what was happening. I decided to join Shine for more support."

How has Shine supported you?

"Receiving the welcome pack, the booklets, Benny Bear books etc. helped so much. I felt so much more informed. I started to read the information on the website and shared it with our extended family.

Dolcee-Rae’s Nannie was so interested in finding out more to support both myself and Dolcee-Rae, and also felt supported. She would message me and say “Shine do this, Shine do that!”

Chatting to other parents on the Little Stars Facebook Group helps too. Reading other people’s stories, helping other mums with ideas and supporting each other helps me so much. I feel connected to others that are in the know!

I also love to read older members’ stories and what they have achieved, it reassures me about Dolcee-Rae’s future.

Our motto for Dolcee- Rae is “Why fit in when you were born to stand out”.

Dolcee-Rae’s nursery have the Benny Books on the book shelf.

I am grateful for the support of Shine and everything they do, thank you.

Dolcee-Rae’s family fundraise for Shine and are currently doing two Easter hamper draws in her nursery and Nannie’s work place."

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