Shine news

NPH Awareness Week - find out what we have planned!

6th May 2024


From 13th - 19th May this year we will be having our first Awareness Week just for Normal Pressure Hydrocephalus (NPH), separate from Hydrocephalus Awareness Week. This allows us to spotlight your specific challenges and experiences, and lead a more focused awareness campaign, as well as providing you with the most useful information possible.

Keep reading to find out how you can get involved!


Join us throughout Normal Pressure Hydrocephalus Awareness Week for a series of special events covering a range of topics most important to you.

All events are now available to book by clicking here.

Information packs

Trying to explain the effects of NPH can be difficult. However, our Shine Resource Packs help create better awareness and understanding of the condition and are available both digitally and in hard copy. These include:

  • General NPH Information Pack for adults 
  • NPH Pack for care providers
  • NPH Pack for GPs

You can request a copy of these packs from Monday 13th May by calling 01733 555988 or emailing

Other support

1-2-1 telephone support is always available from our Support & Development Workers (SDWs) and our Health Team. At Shine we also have a number of online groups that you may wish to join, they're available to those with NPH and to carers for people with the condition. Contact 01733 555988 to be put in touch with your local SDW, to find out more about joining our groups, or for support from the Health Team.

Sharing your experiences

We would like to invite you to add your story to our Shine Voices Video Library. Shine Voices is a collection of videos of members talking openly about their lives and conditions. So far, we haven't had any videos from people with Normal Pressure Hydrocephalus (NPH) or their carers and we want to change that! Sharing your Shine Voices videos in advance of NPH Awareness Week will help us produce an impactful NPH campaign. 

Your experiences of life with NPH can help others facing similar challenges. Your videos will resonate with others diagnosed with NPH, offering comfort and a sense of community. You could even share practical tips for daily life to help others. It can be as simple or as detailed as you feel comfortable with, and it will be a powerful way to make a positive impact.

Your videos will raise awareness of NPH symptoms, helping people recognise them in themselves and others, possibly leading to earlier diagnosis and treatment. Videos are also powerful educational tools that can help healthcare professionals to understand what it's like to live with NPH, so they can understand and support people with NPH better.

Tips for filming
For tips on filming, some inspiration and detailed instructions on how to create and share your story, click here.

For inspiration, and detailed instructions on how to create and share your story, visit


Thank you for considering this invitation, and we look forward to seeing you getting involved during NPH Awareness Week, and to the possibility of adding your unique perspective to our Shine Voices library. More information will follow soon about our plans!

Thank you from the Shine Health Team.

If you have any questions, please contact us on 01733 555988 or  

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